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You are alll so great and supportive

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Christina Websell - 03 May 2005 23:47 GMT
Dear everyone

As much as I would like to reply to each and every post I've had supporting
me through this scary time I find myself in and post purrs to all in need
with personal circumstances, kitty illnesses, and health and family worries
I can only find the energy to post about twice or so a day.  So here comes
purrs and prayers for everyone who needs it.
Jo, you made me smile saying about the raspberry.  I hope you mean the fruit
and not the "blowing a raspberry" noise which here means like sounds like a
fart ;-)  I have been reading about your op and I truly hope you will be
able to hear when they switch the cochlear implant on.  I am told by someone
who had it that it takes a bit of getting used to, so don't be discouraged
if at first it doesn't come up to your expectations.
I am reading all the posts I can, but I have 480 unread, and once again 780
not downloaded, so I guess the undownloaded ones I won't see.
I have sorted out all the animal care, although I sensed one of my
neighbours was not that happy to come round here, 30 yards away once a day
to feed and water the chickens that will be left after I've boarded most
out, and he has to feed the cats too.
His wife said make sure you get in enough cat and chicken food to last.  I
am now stockpiling wet cat food and bikkies in my porch to try and last 10
weeks.  I can't get my head round how to service the chicken food each week
for each and every friend who has some of them.  I have to work out what
each will need times what they have for ten weeks and arrange it all.  My
brain refuses to do that right now.
My brain is probably occupied with my life-threating situation and is
guiding me - I hope - to the best way to survive.  I hope so.
Which is all very well.
I do need to be able to sort out the chicken food and care, please, brain.
I am responsible for the lives of two cats and a lot of poultry and two
geese.  So kick in with some serious advice. ;-)

Tweed
P.S.  No, I haven't lost it, these are just things I can't stop thinking
about.
HRFLTiger - 03 May 2005 23:52 GMT
> I do need to be able to sort out the chicken food and care, please, brain.
> I am responsible for the lives of two cats and a lot of poultry and two
> geese.  So kick in with some serious advice. ;-)///

I'm not being funny, Tweed, but is there anyway that the cats can be
fostered out to family members whilst you are away? Maybe take them
with you to your aunt and uncle? It might make your neighbour more
ameanable.

Helen M
Christina Websell - 04 May 2005 00:54 GMT
>> I do need to be able to sort out the chicken food and care, please,
> brain.
[quoted text clipped - 8 lines]
>
> Helen M

No way at all that I would even consider taking them away from their home
where they can come and go as they please.  You have to remember that they
were both cats that had a home previously and adopted me.
My neighbour will have to come here every day anyway to feed the
fowls that are remaining so how can it be more trouble to drop some food off
for the cats?
He was quite happy to feed them for two weeks in 03 when I went to Germany
for a holiday.
Now he has signed himself up for around ten weeks.  Maybe he didn't really
want to do it, and I think he didn't.
So lets all have cheers for Stan, who has to start work at  6 a.m. and is
still prepared to feed KFC & BF and the chickens. He is a wonderful
neighbour.

Tweed
no more today
mlbriggs - 04 May 2005 00:49 GMT
> Dear everyone
>
[quoted text clipped - 30 lines]
> P.S.  No, I haven't lost it, these are just things I can't stop thinking
> about.

I doubt that you will be 'out of commission" for two months.  I predict
that as soon as you start walking around you will want to be home
supervising the poultry and the furry kids.  Purrs that you will be !  
MLB
Yoj - 04 May 2005 01:23 GMT
> Dear everyone
>
[quoted text clipped - 31 lines]
> P.S.  No, I haven't lost it, these are just things I can't stop thinking
> about.

Okay, here's some serious advice.  First, remember that there are a lot of
prayers and purrs coming your way.

Second, I suggest making a list of the various animals and what needs to be
done for each one.

Third, ask one of your helpful friends to go over it with you and help you
figure out details.  Since you have friends who want to help, someone should
be able to do that.  Maybe one person could keep it and dole it out to
whoever is doing the feeding as needed?

Maybe your brain is focusing on these details - not that they aren't
extremely important - to keep your mind off your personal situation.

((((((((((Tweed))))))))))

All the best.

Joy
Catnipped - 04 May 2005 01:33 GMT
> Dear everyone
>
[quoted text clipped - 31 lines]
> P.S.  No, I haven't lost it, these are just things I can't stop thinking
> about.

Tweed, did the doctors say that you will be in bed and/or need help for 10
weeks?  That seems kind of long to me.  I wasn't cut as much as you will be
(I had a "bikini" cut), but when I had my hysterectomy I was up and walking
the same day and able to get pretty much back to normal (no heavy lifting of
course) in about a week.  My best friend had to have a large part of her
small intestines removed and she *did* have the same type of cut you'll
have, and she was up on the third day and about her business after about 10
days.

I'm not trying to minimize what you'll be going through, but I think you
might be psyching yourself up to fear that you'll be "out of it" for a lot
longer than you might really be.

We're still purring and praying every day for you, please let us know, when
and as you can, how you're doing.

BTW, I'd like to send a card, do you have the name and address of the
hospital you'll be staying in?

Hugs,

CatNipped
Christina Websell - 04 May 2005 02:18 GMT
>> Dear everyone
>>
[quoted text clipped - 47 lines]
> Tweed, did the doctors say that you will be in bed and/or need help for 10
> weeks?

Yes, if not more.

> That seems kind of long to me.  I wasn't cut as much as you will be
> (I had a "bikini" cut), but when I had my hysterectomy I was up and
[quoted text clipped - 10 lines]
> might be psyching yourself up to fear that you'll be "out of it" for a lot
> longer than you might really be.

As I was in hospital for a week recently I know that the pain control is
rubbish. The doctors prescribe it for you and the nurses don't have time to
give it.
I am not going to have a bikini cut. I am being cut right down from chest to
pubis.
I have decided I won't tolerate poor pain control.  When the nurses say I
know you are in pain and I have to find a doctor (and they don't) I shall
say I am I still hurting and they *must* sort it.
And they don't,
Mary - 04 May 2005 02:29 GMT
> >> Dear everyone
> >>
[quoted text clipped - 74 lines]
> say I am I still hurting and they *must* sort it.
> And they don't,

Have friends sneak you in one of those fog horn in a can things for when
they leave you for too long. I am serious. I cannot believe they let you be
in
pain.
Catnipped - 04 May 2005 03:08 GMT
> As I was in hospital for a week recently I know that the pain control is
> rubbish. The doctors prescribe it for you and the nurses don't have time to
[quoted text clipped - 5 lines]
> say I am I still hurting and they *must* sort it.
> And they don't,

Tweed, do they have "patient advocates" there in the UK like we have here in
the US?  Here, if we feel we are not being treated as we should we can ask
to see a patient advocate (nurses *hate* that because they know they'll get
written up if they're found wanting, and if you have to call a patient
advocate, the nurses are usually found wanting).  Ask about it before you go
into hospital, and talk to him/her if they have one and explain your
previous experience and your fears of a repeat.  If they don't have a
patient advocate, then ask to speak to the administrator of nurses and again
explain your fears and why you are afraid it will happen again.  The squeaky
wheel really does get the grease!

Hugs,

CatNipped
Lesley - 04 May 2005 10:53 GMT
> Tweed, do they have "patient advocates" there in the UK like we have here in
> the US?

Try PALS (Patient Advice and Liason Service- we have a thing about cute
acronyms in the NHS!) although they are mainly concerned with
complaints they are also there to give patient advice and direct them
to where they need to go. Every NHS trust has one.

Thinking of you Tweed

Lesley

Slave of the Fabulous Furballs
Howard Berkowitz - 04 May 2005 05:11 GMT
http://www.modern.nhs.uk/cancer/sig/1572/2068/patientinfo.pdf is a
patient information guide including your hospital. Among other things,
it discusses the efforts of several hospitals to improve communication
and support of cancer patients.  It should give you additional points of
contact and support.

Again, hugs and purrs.
Christina Websell - 05 May 2005 23:03 GMT
> http://www.modern.nhs.uk/cancer/sig/1572/2068/patientinfo.pdf is a
> patient information guide including your hospital. Among other things,
[quoted text clipped - 3 lines]
>
> Again, hugs and purrs.

Thank you so much, Howard, for taking the trouble to search for these
links - I have read them all, and now feel a little bit better informed
about what I ought to expect, rather than do what we Brits always do and
just surrender to the medics.
I remembered today that I had a letter that was given to me on discharge so
I thought I'd better read it.
It's a good job I did because it says a) that I have to go for a
pre-operative assessment on 10th May - and that if I don't attend my
operation will not go ahead.. and b) that I have to present myself there on
Monday 16 May for the operation to be the next morning.  I did think it was
rather strange to admit me on a Sunday and that's what they definitely told
me verbally 15/16.

Yesterday I rang another friend, who I worked with for 17 years some time
ago;  we have always been in touch since then, one of those friendships
where you know you can just take up where you left off, even if you've not
spoken for 6 months.
Her name is Margaret.  We have always had this thing that if I ring her up I
say "Maaaarrg?"  and she says  "Teeeeeen?" and vice versa.
I questioned myself whether to tell her, but once again found myself coming
back to what my counsellor said, what and how would you feel if she didn't
tell *you*?  So I phoned her last night and when she answered I said
"Maaaarrg??"  and she said "TEEEEEN!!!  How are you?"
I said that was what I was ringing about and could she possibly come round
and see me?  She said what-  now?   I said yes.  She said she couldn't as
she had to attend a course that evening and could I tell her what was the
trouble there and then?  I said not on the phone so she came round this
afternoon before 5.

I wish I had to stop telling my friends this news.  Each time I go through
it, it hits me again.  I wish one of my relatives would volunteer to do it
for me.

So I said  "Marg, there is no easy way of telling you what I have to say"
and she said tell me it anyway, so I did.
She stayed for 4 hours and we did not stop talking about the issues
involved.  One of the things she said was  "well, you realise that this
thing has got to come out and try and think of the pain from the incision as
"a healing pain." because it won't hurt so much or for so long as what you
are enduring now."
She has had abdominal surgery herself, so I respect her views.
She's quite right actually.  I might be in pain after my operation but at
least I can think that the pain will improve as I heal then gather my
strength for the chemo.

Tweed
Howard Berkowitz - 06 May 2005 04:44 GMT
> > http://www.modern.nhs.uk/cancer/sig/1572/2068/patientinfo.pdf is a
> > patient information guide including your hospital. Among other things,
[quoted text clipped - 9 lines]
> about what I ought to expect, rather than do what we Brits always do and
> just surrender to the medics.

While I have the distinct impression that the hospital actually has an
excellent pain management service, remember the magic words if you
aren't getting proper relief: "What would Dame Cicely Saunders have
thought of this?"  She was a healer most worthy of her knighthood, and
mere death doesn't keep her prominently out of many clinician's
conscience.

My personal interactions with hospital staff can be a bit strange: one
of my preferred comments is "I am not a patient. I am an impatient."

> I remembered today that I had a letter that was given to me on discharge
> so
[quoted text clipped - 8 lines]
> told
> me verbally 15/16.

It's pretty standard to have a preoperative assessment such as you
describe. Typically, it will involve an exam by a primary physician --
family practice, internal medicine, etc. -- that has not been involved
in your care. While I originally disliked this idea, I've come to the
conclusion it's a wise safety measure for someone to see you without
preconceptions.  Once in a great while, a fresh look might reveal some
other physical condition that might not bar surgery, but, for example,
might lead to different approaches in anesthesia. If it's like US
practice, you will get various blood tests, an ECG, and possibly a chest
X-ray.

You might call the anesthesia/pain management people before your visit,
and see if you can meet with a specialist nurse from that service before
your admission.  Nurses with advanced training are key people in pain
management groups, and often can be better at planning for your needs
than the physicians.

I'm only guessing, but it's possible they are admitting you a little
early for getting your intestines cleaned out -- that is sometimes a
precaution for exploratory abdominal surgery. Sunday admissions are rare
here, since there may be limited staff in the labs and radiology and
it's not practical to get testing. On the other hand, if this hospital
does have good weekend staffing, they might try to spread the workload.
Christina Websell - 06 May 2005 20:14 GMT
>> > http://www.modern.nhs.uk/cancer/sig/1572/2068/patientinfo.pdf is a
>> > patient information guide including your hospital. Among other things,
[quoted text clipped - 13 lines]
> excellent pain management service, remember the magic words if you
> aren't getting proper relief:

There is absolutely no problem with the doctors who are very willing to
prescribe any pain meds I could possibly need, any and all.  And there they
are, on my drug chart.  The problem lies in that the nurses, for whatever
reason, lack of time perhaps,  do not have time to give them to me at the
appropriate time to keep me out of pain.
I hate this "named nurse" thing too.  There is a special nurse that is
supposed to look after you, and for a couple of days my named nurse was
Delia, so when I spotted her passing the foot of my bed I said  "Delia, I
really need some tablets or something"
She then said  "I am not your nurse today." so I said "well who is, then?"
She said "Marilyn"  so I said who was Marilyn and why hadn't I seen her all
day?

It is all very well for the LGH to have a pain policy, and for sure the
doctors are doing it. It's a shame that the pain relief often doesn't get as
far as being administered to the patients by the nurses.

TMI about the intestines.  I am dreading it all.  In fact, to be truly
honest I am very very scared.  More than that.  About as scared as it's
possible for a human to be.

Tweed
I would not mind if I died in the night tonight.
Debbie Wilson - 06 May 2005 20:54 GMT
> It is all very well for the LGH to have a pain policy, and for sure the
> doctors are doing it. It's a shame that the pain relief often doesn't get as
> far as being administered to the patients by the nurses.

This is probably easier for me to say than for you to actually do in
that situation, but if your energy permits, then speak up, speak loudly
and speak often, if you need something you are not getting. Make A Fuss.
and make it Loudly!  I think the idea of a named nurse is pretty
rubbish, by the sound of it. How can any nurse pass by a patient who is
plainly in need of care, and basically say, 'it's not my problem'?  

Do not be afraid to declare your needs, as often and as obviously as
possible!

And BTW, WE would mind if you died in the night tonight! No more of that
thank you!

Have you got someone who can come in and spend time with you now, before
you go in? It sounds like you need someone there to try and distract you
from your worries, somehow.

Deb.

Signature

http://www.scientific-art.com

"He looked a fierce and quarrelsome cat, but claw he never would;
He only bit the ones he loved, because they tasted good." S. Greenfield

CatNipped - 06 May 2005 21:27 GMT
> It is all very well for the LGH to have a pain policy, and for sure the
> doctors are doing it. It's a shame that the pain relief often doesn't get
[quoted text clipped - 3 lines]
> honest I am very very scared.  More than that.  About as scared as it's
> possible for a human to be.

Tweed, the *second* you don't get your medication on time, ask to speak to
the patient advocate or the director of nurses.  I understand that they are
busy, but there are some things that should be prioritized, and pain relief
is one of them.  Better yet, find out the name and phone number of the
patient advocate or director of nurses *before* you go into the hospital
that way you won't have to rely on one of the nurses to call him/her for
you.

> Tweed
> I would not mind if I died in the night tonight.

No, oh no, don't even say things like that - I'll kick your butt right
through cyber-space, young lady!  ;>

Hugs,

CatNipped
tanada - 07 May 2005 04:02 GMT
> Tweed, the *second* you don't get your medication on time, ask to speak to
> the patient advocate or the director of nurses.  I understand that they are
[quoted text clipped - 3 lines]
> that way you won't have to rely on one of the nurses to call him/her for
> you.

In fact, it might not be a bad idea to get hold of the patient advocate
or nursing director, tell them of your experiences and that you are
worried and afraid that the same, or worse, will happen this time.  It
will give them a thumbs up that you are not going to tolerate being
treated poorly.

Pam S.
Karen - 07 May 2005 04:21 GMT
>> Tweed, the *second* you don't get your medication on time, ask to speak to
>> the patient advocate or the director of nurses.  I understand that they are
[quoted text clipped - 11 lines]
>
> Pam S.

I was thinking that too. Don't be afraid to tell them how afraid you are of
the pain and your experience. I think sometimes fear is what makes pain
worse. I'm certain they will try harder if they know.
Howard Berkowitz - 06 May 2005 22:30 GMT
> >> > http://www.modern.nhs.uk/cancer/sig/1572/2068/patientinfo.pdf is a
> >> > patient information guide including your hospital. Among other
[quoted text clipped - 34 lines]
> all
> day?

Do UK hospital beds have easy access to telephones?  If so, call the
nursing supervisor if this happens.

You might prepare, in advance, some signed sheets of paper saying you
did not receive appropriate and ordered pain medications. In the US, the
magic words are to hand that to a nurse and say "Put this in the chart."  
Here, a request to chart something has legal authority, and a nurse who
refuses to do that is on very, very thin ice.  Since the doctor will see
the chart, this will get noticed.

> It is all very well for the LGH to have a pain policy, and for sure the
> doctors are doing it. It's a shame that the pain relief often doesn't get
[quoted text clipped - 7 lines]
> Tweed
> I would not mind if I died in the night tonight.

{{{{{{Tweed}}}}}}
Christina Websell - 06 May 2005 23:25 GMT
>> >> > http://www.modern.nhs.uk/cancer/sig/1572/2068/patientinfo.pdf is a
>> >> > patient information guide including your hospital. Among other
[quoted text clipped - 36 lines]
>
> Do UK hospital beds have easy access to telephones?

No.  Did not even have radio since until a month ago this was a maternity
ward.

> If so, call the
> nursing supervisor if this happens.
[quoted text clipped - 5 lines]
> refuses to do that is on very, very thin ice.  Since the doctor will see
> the chart, this will get noticed.

I don't know if it applies here.   The worst thing to do is to make yourself
unpopular with the nurses,  If you do, and you press your bell they will
only come to you after about half an hour and they will delay your pain
meds, presumably to teach you a lesson not to be a nuisance.

>{{{{{{Tweed}}}}}}

Thanks, I need all the hugs I can get right now.

Tweed
polonca12000 - 06 May 2005 22:44 GMT
Please do not think about dying. You are not going to die. You will have an
operation and then you will be better. I know this is scary and I probably
do not know the right words to say, but we are here for you, and after all
this scary stuff passes, you *will* be ok.
We are all thinking of you and if there's anything we can do, please tell
us.
Soncek sends his strongest purrs and I send my very best wishes for you to
get through this really hard times and be ok really soon,
Signature

Polonca & Soncek

<snip> I am dreading it all.  In fact, to be truly
> honest I am very very scared.  More than that.  About as scared as it's
> possible for a human to be.
>
> Tweed
> I would not mind if I died in the night tonight.
Dan M - 06 May 2005 23:23 GMT
> Please do not think about dying. You are not going to die. You will have an
> operation and then you will be better. I know this is scary and I probably
[quoted text clipped - 4 lines]
> Soncek sends his strongest purrs and I send my very best wishes for you to
> get through this really hard times and be ok really soon,

I second that.  In addition to the usual purrs from the Highland
kitties, they are now joined by Harri Roadcat and Ranger Greykitten
purrs. Those two can generate some of the most powerful purrs I've ever
heard/felt!

You are in our prayers and purrs.
Christina Websell - 06 May 2005 23:31 GMT
> Please do not think about dying.

I can't help it, Polonca.

> You are not going to die. You will have an
> operation and then you will be better.

Ovarian cancer only has a 3 in 10 survival rate.
I don't want to leave my cats.

I know this is scary and I probably
> do not know the right words to say, but we are here for you, and after all
> this scary stuff passes, you *will* be ok.
> We are all thinking of you and if there's anything we can do, please tell
> us.
> Soncek sends his strongest purrs and I send my very best wishes for you to
> get through this really hard times and be ok really soon,

Thank you so much, Polonca,  I certainly need all the purrs I can get right
now.

Tweed
Mary - 06 May 2005 23:51 GMT
> > Please do not think about dying.
>
[quoted text clipped - 5 lines]
> Ovarian cancer only has a 3 in 10 survival rate.
> I don't want to leave my cats.

Please, Christina: every single day, sit quietly and envision the
surgery happening, it being successful, and you being cancer free,
living on for decades, doing the things you love to do. Visualize
it as though it has already happened. And when you sit quietly,
at other times, with each breath imagine all the dark badness
leaving as you exhale and light and health entering you when
you inhale. It doesn't take long to do this once a day. I know it
sounds silly, but please try it.
Howard Berkowitz - 07 May 2005 14:21 GMT
> > > Please do not think about dying.
> >
[quoted text clipped - 14 lines]
> you inhale. It doesn't take long to do this once a day. I know it
> sounds silly, but please try it.

I have to agree. While I tend to be dubious about many "alternative"
approaches, there is too much objective evidence that the mind
influences the body. Sort of TMI, but there's a chapter in one of my
rheumatology/autoimmune diseases called "psychoneuroimmunology."

I have been in intensive care units, watching patient monitors, when
they go through some spiritual exercise, ranging from the Catholic
Sacrament for the Sick (formerly Last Rites), to neopagan healing
rituals, to holding hands within a circle of friends and family,
standing silently.  In each of these cases, I watched as the
physiological data shown by the monitors showed objective improvement,
which lasted for several hours at a time.

Pain management teams often use visualization/meditation techniques to
deal with pain -- one method asks you to envision the pain, treat it as
some object, and, in your mind's eye, shrink it until it disappears.
This often helps migraines.

I think you will find many cancer specialists that will say they don't
know if visualizing a tumor and thinking it will shrink helps, but, as
long as you are getting other appropriate therapies, it can't hurt and
may help.  There's a signficant chance it will help with discomfort.

{{{{{Tweed}}}}}
Mary - 07 May 2005 17:36 GMT
> > > > Please do not think about dying.
> > >
[quoted text clipped - 19 lines]
> influences the body. Sort of TMI, but there's a chapter in one of my
> rheumatology/autoimmune diseases called "psychoneuroimmunology."

Thank you for responding to this, Howard. I have never spoken publically
about it, much less posted about it. My mother did it, she called them
"treatments," I imagine it was part of something she read about. She
urged me to do it, and when I began, I was amazed.

> I have been in intensive care units, watching patient monitors, when
> they go through some spiritual exercise, ranging from the Catholic
[quoted text clipped - 13 lines]
> long as you are getting other appropriate therapies, it can't hurt and
> may help.  There's a signficant chance it will help with discomfort.

I did not know any of this. It's neat to know that there is some
evidence that it helps.

> {{{{{Tweed}}}}}

And from me too. I cannot imagine how frightening
this must be.
Howard Berkowitz - 07 May 2005 22:51 GMT
> > > "Christina Websell" <spamfree@tinawebsell.wanadoo.co.uk> wrote in
> message
[quoted text clipped - 28 lines]
> "treatments," I imagine it was part of something she read about. She
> urged me to do it, and when I began, I was amazed.

There's solid data in medical literature, although it's much more
primitive an understanding than in other fields. One of the things that
good pain management specialists understand is that they have a toolbox
with lots of tools. For example, acupuncture works in some, but not all
patients. Some of the same patients may or may not respond to electrical
stimulation (of many kinds), and a patient that responds to an
electrical stimulator may not respond to acupuncture. [Brief
got-to-get-it-in standard joke about acupuncture "stick enough needles
into anyone and they will stop complaining about anything"]

Having had acupuncture myself, without much success for the particular
problem, I will note that it's not at all like getting an injection or
even a diabetic fingerstick -- there is very little sensation.  The
veterinary referral centers here in the suburbs of Washington DC may
have full- or part-time veterinary acupuncturists, so it's on topic for
cats.

There are lots of other treatments that don't involve drugs, ranging
from conventional physical therapy (exercise, passive movement, heat and
cold, ultrasound, etc.) to biofeedback to support groups.  I would never
reject spiritual healing methods as long as appropriate other treatments
are continued -- I do have problems with prayer as the ONLY treatment.
By "spiritual", I'm not limiting it to traditional religion -- there are
at least a reasonable number of accounts of people benefitting from
shamanic healing rituals, when such rituals are not part of their
culture.

At the same time, I am a hard-core medical type who prefers to know the
molecular biology in any treatment.

A good scientific place to start is the Institute for Complementary and
Alternative Medicine at the US National Institutes of Health:  
http://nccam.nih.gov/

> > I have been in intensive care units, watching patient monitors, when
> > they go through some spiritual exercise, ranging from the Catholic
[quoted text clipped - 21 lines]
> And from me too. I cannot imagine how frightening
> this must be.
Karen - 07 May 2005 02:26 GMT
>> Please do not think about dying.
>
[quoted text clipped - 18 lines]
>
> Tweed

Tweed, there is a horse running here tomorrow in the Kentucky Derby whose
breeder was told 3 years ago he had 7 months to live with colon cancer. He
is at the Derby as I type, watching the race tomorrow. The doctor told him
this horse is better chemo right now. There is a little girl that was
diagnosed with neuroblastoma on her first birthday. Her name was Alex and
now a horse named Afleet Alex is running tomorrow for her and for his
breeder. She lived years past what the doctors told her parents that night
of her first birthday, only succumbing to her cancer this last fall at 8
years of age. Doctors are not Gods. They are people who give educated
guesses. I'm going to post the article here so you can read about these
people. I hope it is some hope for you. We love you. Your cats love you.
Your family loves you. As it says on Afleet Alex's t-shirt Courage.
Strength. Heart.

http://www.msnbc.msn.com/id/7750669/

Smarty Jones, Seabiscuit rolled into one
Similarities are uncanny for anti-cancer symbol Afleet Alex
By Mike Brunker
Horse racing editor
MSNBC
Updated: 9:15 p.m. ET May 6, 2005

LOUISVILLE, Ky. - Joe Lerro, wearing a Philadelphia Eagles jersey and a
smile as broad as his shoulders, gestures at the scene outside Tim Ritchey¹s
barn at Churchill Downs ‹ the reporters and TV crews, the woman selling
T-shirts draped over a sawhorse and the visitors merrily taking photos of
the star getting his morning bath ‹ and asks a question that demands no
answer: ³How can we not believe in karma?²

If smiles and hugs were the coin by which the Kentucky Derby was awarded,
Afleet Alex would win the race in walkover. The atmosphere outside the
colt¹s stall in Barn 41 borders on festive, with trainer, owners and T-shirt
selling volunteers emitting enough good vibrations for a Beach Boys concert.

Though Afleet Alex has contributed to their sunny dispositions by training
well coming up to Saturday¹s race, that is not the only reason they are so
upbeat. They also have been buoyed by the fact that his success has enabled
them to hook their good fortune to a good cause that has made Afleet Alex
something of a poster horse for the fight against cancer.

It seems no Kentucky Derby is complete these days without at least one horse
tale guaranteed to melt the heart of the most-hardened gambler, and Afleet
Alex is this year¹s runaway winner.

Like Funny Cide and Smarty Jones before him, the colt has everyman owners ‹
five friends and acquaintances from Philadelphia, three of whom are now on
the brink of running in the Kentucky Derby with the first horse they have
ever owned. The slogan embraced by Lerro, Chuck Zacney, Jennifer Reeves, Bob
Brittingham and Joe Judge ‹ ³just a bunch of knuckleheads trying to have
some fun² ­ tells you all you need to know about their approach to the game.

³We¹ll sit and drink some beer (on race day); George can drink champagne,²
said Lerro, referring to New York Yankees owner George Steinbrenner, who
owns favored Bellamy Road.

He added that he and Afleet Alex¹s other owners plan to abandon the luxury
of the owner¹s enclosure early in the day to experience the raucous infield
party and hand out Afleet Alex T-shirts and buttons.

Like his predecessors, Afleet Alex also has arrived at the Derby after a
roundabout journey from humble beginnings. He was purchased for the bargain
price of $70,000 and began his career at Delaware Park, a mid-level
racetrack just a few hours up the road from Smarty Jones¹ old stomping
grounds of Philadelphia Park.

In addition to sharing Smarty Jones¹ Philadelphia connection, Afleet Alex¹s
has a trainer and jockey are cut from the same cloth as those of last year¹s
Kentucky and Preakness Stakes winner:

Tim Ritchey, who looks a little like a young Mel Brooks, is an accomplished
but little-known trainer who has toiled in relative anonymity in the Midwest
and mid-Atlantic. And, though aptly named for the Kentucky Derby, Jeremy
Rose is a young journeyman jockey with no Triple Crown races on his resume.

The parallels continue: Like Smarty Jones, Afleet Alex survived an early
life-threatening situation that helped cast him as an underdog who had to
fight his way to the top.

³His mother had some problems at birth and unfortunately she didn¹t have any
milk, so he was bottle fed by two little girls at the farm where he was for
24 hours a day for the first 12 days of his life,² Ritchey recalled
Thursday,. ³He learned at an early age that he had to be very trusting of
people and that¹s something that has carried over. To this day, he just has
complete faith and trust in humans.²

But, as if a screenwriter somewhere keeps fine-tuning a script, Afleet
Alex¹s story has a new dimension as well. Like a modern-day Seabiscuit, he
is a horse with a gift for bringing people together and helping them find
hope in tragedy.

His breeder, John Silvertand, was diagnosed with colon cancer nearly three
years ago, shortly after Afleet Alex was born, and given just three months
to live. But the 60-year-old former Royal Air Force pilot is instead driving
with his family from Lake Worth, Fla., to Louisville this week to attend the
Derby as a guest of the owners, collectively known as Cash Is King Stable.

³The horse keeps me going,² Silvertand told the Associated Press this week
by telephone before his departure. ³I truly believe he¹s helping me in my
battle.²

Afleet Alex is helping to fight cancer in another way, thanks to the
generosity of his owners and a young girl¹s courageous battle against the
disease.

Alexandra ³Alex² Scott was diagnosed with an aggressive form of childhood
cancer called neuroblastoma shortly before her first birthday.

She ultimately lost her fight against the disease, but not before planting a
seed that gives new meaning to the saying, ³When life hands you lemons, make
lemonade.²

At the tender age of 4, Alex decided to raise money to give to the hospital
where she was undergoing cancer treatment. With her parents, Jay and Liz,
she came up with a tried-and-true approach: A lemonade stand in the front
yard.

The stand was a success, not just for the 50 cent sales that soon turned
into more than $2,000 but for the word that soon spread about her
inspirational fight. After local media reports on her fundraising drive,
similar stands popped up around the country.

Alex died last year on Aug. 1 at the age of 8, but not before seeing the
fund that she started with her little lemonade stand grow into the Alex¹s
Lemonade Stand Foundation. (http://www.alexslemonade.com/) To date, the
foundation established by her parents has raised more than $1.6 million.

Alex didn¹t live long enough to meet Afleet Alex (so named because three of
the owners have children named Alex), but after reading about her story the
colt¹s owners phoned the Scotts and said they would like to donate a portion
of the horse¹s winnings to her cause. So far, that has amounted to about
$5,000 for each of Alex¹s six victories.

The colt¹s owners also have worked with the foundation sell special
T-shirts, hats and buttons bearing Afleet Alex¹s likeness and bearing the
words, ³Courage. Strength. Heart,² including setting up the impromptu
sawhorse shop outside the colt¹s barn.

The goodwill generated by owners¹ involvement in Alex¹s cause has grown over
the months as Afleet Alex has established himself as one of the nation¹s top
3-year-old horses. By this week, the feeling had grown so intense that the
44-year-old Lerro could only shake his head in wonder at the strange
confluence of good fortune and a good cause.

In addition to thinking about the implications of kharma, the 44-year-old
real estate developer and restaurateur, said he and his friends had gained a
fuller appreciation for what they are experiencing from their interaction
with Silvertand, the Scotts and other cancer patients and survivors who have
rallied around them and their horse.

³It could be over in a minute and we have to cherish every moment,² he said.
mlbriggs - 08 May 2005 17:38 GMT
>> Please do not think about dying.
>
[quoted text clipped - 17 lines]
>
> Tweed

Still sending purrs.  I think it is time for one of my favorite
quotations:

"One truth we gain from living through the years:
Fear brings more pain than does the pain it fears>"

Best wishes.   MLB
Yoj - 07 May 2005 03:11 GMT
> TMI about the intestines.  I am dreading it all.  In fact, to be truly
> honest I am very very scared.  More than that.  About as scared as it's
> possible for a human to be.
>
> Tweed
> I would not mind if I died in the night tonight.

This breaks my heart, Tweed.  I can't say, "Don't feel that way" because
nobody can help the way they feel.  All I can say is that purrs and prayers
for you are coming from all over the world.  My church will say a prayer for
you on Sunday.  We'll pray for an easing of the pain and a successful
surgery.

((((((((((Tweed))))))))))

Joy
tanada - 07 May 2005 03:59 GMT
> TMI about the intestines.  I am dreading it all.  In fact, to be truly
> honest I am very very scared.  More than that.  About as scared as it's
> possible for a human to be.
>
> Tweed
> I would not mind if I died in the night tonight.

I would mind if you died in the night.  I'd mind if you died in the day.
 Goodness girl, you need to improve the attitude.

I was told I might have uterine and/or ovarian cancer back when Mandy
was a baby.  Fortunately, all the mess was benign.  The hard part was
knowing that every day something was going bad inside of me, and that I
didn't have anyone I could cry with and get over it.

I was terrified.  I'd never been so terrified, to the point where I
couldn't sleep for several days.  I was also very lucky.  Not only did I
survive the procedure, but I didn't have any kind of cancer, just
tumors.  You may have that kind of luck as well.  Don't put it past
yourself.

Be prepared for the worst, that's fine, but expect the best.  This group
is magic.  It is amazing the things that have happened with the power of
the purr behind them.

The intestine thing, don't worry about it.  I've had it done and the
worst part was getting to the bathroom in time.  Take up a couple of
good books, needlework and whatever else you can do in hospital (I took
crossword puzzle books as well) and think of it this way.  Any pain you
have after the procedure is going to be less than the pain you're having
now.  I know, I've BTDT.  Also, any pain is going to be, as your friend
said, healing pain.  Girl, I'm the biggest pain wuss in the USA and if I
can handle any pain there is, anyone can.

I'm not going to tell you to buck up and get over it, because it won't
do any good.  You have to face the future in your own way.  You'll get
there and you'll do fine.  We'll all be purring and rooting for you to
be well.  Can you give someone over there in your part of the world
permission to post for you while you're away from a computer?  Is there
someone who can call one of the group and let them know how you are
doing?  We'll be worrying and waiting to know how you are and so forth.

Pam S.
Marina - 07 May 2005 04:16 GMT
<snip>

> TMI about the intestines.  I am dreading it all.  In fact, to be truly
> honest I am very very scared.  More than that.  About as scared as it's
> possible for a human to be.
>
> Tweed
> I would not mind if I died in the night tonight.

Of course you are scared. You wouldn't be human if you weren't. I'm
strange in that I tend to get depressed, not before, but after an
operation, when everything is alright. That doesn't make much sense,
does it? Just remember there are people and cats all over the world
thinking of you and purring for you. And we would all mind very much if
you died in the night. {{{Christina}}}

Signature

Marina, Frank, Nikki, and Mere
marina (dot) kurten (at) pp (dot) inet (dot) fi
Pics at http://uk.pg.photos.yahoo.com/ph/frankiennikki/
and http://community.webshots.com/user/frankiennikki

tanada - 07 May 2005 05:20 GMT
> Of course you are scared. You wouldn't be human if you weren't. I'm
> strange in that I tend to get depressed, not before, but after an
> operation, when everything is alright. That doesn't make much sense,
> does it? Just remember there are people and cats all over the world
> thinking of you and purring for you. And we would all mind very much if
> you died in the night. {{{Christina}}}

I got depressed after my surgeries.  One of the surgeons put it this
way:  even if it was going bad, it was a part of you.  You lost a part
of you, so you're naturally depressed.  Don't feel guilty about it, just
know that you'll get over it eventually.

I got over it.

Pam S.
Mary - 07 May 2005 17:40 GMT
> <snip>
>
[quoted text clipped - 6 lines]
>
> Of course you are scared. You wouldn't be human if you weren't.

I would be so scared I don't have any idea what I would do,
and I don't scare easily. I think Christina's grace, courage, and honesty
are admirable. As someone said, it isn't courage if your're not scared.
Howard Berkowitz - 07 May 2005 23:00 GMT
> > <snip>
> >
[quoted text clipped - 12 lines]
> and I don't scare easily. I think Christina's grace, courage, and honesty
> are admirable. As someone said, it isn't courage if your're not scared.

Absolute agreement. Courage, indeed, is not the absence of fear, but the
overcoming of fear.

Something that works for me, but might not for many others, is to
involve myself thoroughly in my care, becoming expert on what is
involved. I've grumbled about some surgeries where either I was under a
general anesthetic, or for some reason couldn't watch.  With a surgeon
who knew me well, we recognized the value of my being able to watch
(with infection protection) nerve surgery on my wrist and arm.  I've
refused sedation for all my invasive cardiac procedures that didn't
require general anesthesia, and watched every detail. In the research
programs where I'm a volunteer, there's enough evidence in the chart
that I simply don't get excited while watching someone mucking around in
my heart -- although I have been known to do the Monty Python Norwegian
Blue Parrot skit as a duo with the cardiogist.

Obviously, Christina couldn't be awake for the kind of surgery involved
here. That being said, one immensely helpful thing, for which really
good nurses are key, is to let the patient have as much control as
possible.  When a nurse asks a patient in which arm the patient wants an
injection, he or she is empowering the patient and making them feel less
dependent. Even if you are on a liquid diet, giving you some meal
choices is also empowering. Clinicians may ask you to keep notes --
that's both valuable and also makes you feel less helpless.

{{{{Christina}}}}

And thank you, Mary, for bringing up some of these points.
Adrian - 08 May 2005 08:56 GMT
<snip>
> Tweed
> I would not mind if I died in the night tonight.

Please don't say that, Tweed. You're loved by so many people, not least
your cats, this world would be a worse place without you.

{{{{{{{{{{{{{Tweed}}}}}}}}}}}} Hugs and purrs.
Signature

Adrian (Owned by Snoopy & Bagheera)
A house is not a home, without a cat.

Christina Websell - 08 May 2005 21:06 GMT
> <snip>
>> Tweed
[quoted text clipped - 4 lines]
>
> {{{{{{{{{{{{{Tweed}}}}}}}}}}}} Hugs and purrs.

Awww, thank you Adrian and everyone.  I was having a bad day. Everything had
taken ages to do and had exhausted me afterwards so that I had to rest up
between jobs that I am trying to get done and organised before I go into
hospital.  I had been on my own a lot and I suppose when it's getting late
at night in such circumstances I let my imagination run away with me.
I'm feeling more positive today because my cousin Margi fetched me and took
me over to Auntie & Uncle's for Sunday lunch and had a nice quiet day.  I
was worried because they are on holiday during my hospital stay and would
not be back until 10 days after my operation which meant I would have to
stay in hospital for at least that length of time as I would have had
nowhere to be discharged to.
As the consultant said 7-10 days stay, I began to be concerned that if I
*was* able to go home after 7, and couldn't, I would be taking up a bed that
another person like me desperately needed.
Anyway today Auntie Margaret (after I reminded her last week that the
hospital was *not* a hotel) - and she had said they'll have to keep you if
you have nowhere to go - must have thought again because she told me today
that they have altered their holiday so they are home exactly 7 days after
my admission, so I feel much better about that.
Now then, about keeping you all updated.  My coz Margi is going to Spain
today, but will be back at the weekend 14 May, I asked her if she would mail
either Helen or Debbie about my progress (she has no clue about ngs, and I'm
not about to teach her) and she says she will.  Either that or my friend
June will.
In order for you to know these are coming from my family/friends and not
think it's spam, my cousins e mail address will start margiatmaildot and my
friends will start with rearsbyleaataol

The speakerphone, although a fantastic idea, won't be possible as the cats
will be shut out of the house (as will my neighbours, only June has a key)
and the phone is in the kitchen.
They have a bed each anyway in the conservatory and now the weather is
better they are often to be found meatloafing on them  so I don't think it
will a hardship for them not to sleep inside for a few weeks.
They were okay with it when I went to Germany to visit Nüle in 2003, but
that was only for ten days.

I shall leave the two cats some clothes with my scent on, and Margi has
promised to take me over to my house to spend a few hours there as soon as I
am able to so they can see me to give them hope.

The fact that some of you say you would like to send cards:   This would be
*lovely* because when I was in just recently the fact that I got quite some
letters and cards and also a couple from Germany seemed to impress, not sure
why and a couple of the nurses asked for the stamps for their children.
If I get quite a few from all over the world, they may start to think they
have some sort of minor celebrity on their hands.  LOL!
Then I might say if I am feeling "norty" as Boyfriend would say.
"You don't know who I am, do you?"  And they would say no and I would say
maybe it's best that you don't..  <beg>
That would amuse me very much.

Tweed
Annie Wxill - 08 May 2005 21:26 GMT
> If I get quite a few from all over the world, they may start to think they
> have some sort of minor celebrity on their hands.  LOL!
[quoted text clipped - 3 lines]
> That would amuse me very much.
> Tweed

Tweed,
(Giggle) I love that response.  But, of course, you are somebody important.
How long do you suppose it would take a card to make the journey from Texas,
U.S.A. to England?
I'd hate to have it arrive at the hospital before you do or after you leave.
Maybe I'll send you a picture postcard so that you can see what it's like
here.
I know you are afraid, but we are continuing to send purrs and prayers that
you will have a successful surgery and a full and rapid recovery.
Hugs,
Annie (aided by Cinder and Rosie)
Christina Websell - 08 May 2005 22:11 GMT
>> If I get quite a few from all over the world, they may start to think
>> they have some sort of minor celebrity on their hands.  LOL!
[quoted text clipped - 9 lines]
> How long do you suppose it would take a card to make the journey from
> Texas, U.S.A. to England?

I would say five days or so. Maybe a week at the most, judging by what my
friend Bob in Michigan sends me.

> I'd hate to have it arrive at the hospital before you do or after you
> leave.

You could always write on it  "for a patient arriving on Ward 31 16th May"
and send it now.  They've been very good, forwarding to my home address two
cards that arrived after I'd left, they don't just dump them.

> Maybe I'll send you a picture postcard so that you can see what it's like
> here.

That would be lovely.

> I know you are afraid, but we are continuing to send purrs and prayers
> that you will have a successful surgery and a full and rapid recovery.

I realise that this thing I have needs to be removed, and quickly and it's
only 9 days away.  I can hardly wait to stop feeling and looking like I'm 8
months pregnant with pain as well and it all happened so very quickly.

I am not confident still about the pain relief.  I know it will make no
difference who I get involved and if those meds that you desperately need
have been written up for you by the docs it seems like everything is
perfect.  Oh, look, your pain relief meds are all written up!  Which means
you get them, they think.  Not.
The nurses are simply too busy getting other patients ready for theatre, the
turnover is very high so those of us who had been unfortunate enough to have
been in longer without surgery can get ignored.
If you ask for pain relief no nurse will agree to give it to you if there
isn't a doctor on the ward, which is often.
I might have said this before, but a nurse said to me you cannot have
morphine unless you agree to stay in bed and I said how stupid was that
since the only way I could get out of bed would be if I got it and I wanted
to get out of bed and go for my dinner.
It's ridiculous to want you to stay in bed, as you are at risk of blood
clots.
The day I was discharged the consultant said to me "I want you to go home
and wait for your operation, not lying around here getting blood clots in
your legs."  !!!!  Couldn't you just love him? <bg>

Tweed
Annie Wxill - 08 May 2005 23:47 GMT
...> The day I was discharged the consultant said to me "I want you to go
home
> and wait for your operation, not lying around here getting blood clots in
> your legs."  !!!!  Couldn't you just love him? <bg>
>
> Tweed

Well, I bet you were glad to get out of there and back to your kitties and
chickens, anyway.
It's hard waiting, but it gave you time to make arrangements for the care of
your animals and to make sure your aunt and uncle will be available to care
for you.
I hope that you feel better soon after your surgery.
Annie
Karen - 09 May 2005 00:00 GMT
> ...> The day I was discharged the consultant said to me "I want you to go
> home
[quoted text clipped - 10 lines]
> I hope that you feel better soon after your surgery.
> Annie

One thing that you would have to think is, how could it not feel at least
some better to have that out of you? I really hope that is so. Hang in there
Tweed.
Debbie Wilson - 09 May 2005 12:32 GMT
> Now then, about keeping you all updated.  My coz Margi is going to Spain
> today, but will be back at the weekend 14 May, I asked her if she would mail
> either Helen or Debbie about my progress (she has no clue about ngs, and I'm
> not about to teach her) and she says she will.  Either that or my friend
> June will.

Yes, she or anyone you may see is perfectly welcome to email me, and I
will pass the updates on to the group.

> I shall leave the two cats some clothes with my scent on, and Margi has
> promised to take me over to my house to spend a few hours there as soon as I
> am able to so they can see me to give them hope.

That's an excellent idea - good for you to see them too, and know they
are OK. If they see you, they are much less likely to go into hidiing
because you're not around.

> Then I might say if I am feeling "norty" as Boyfriend would say.
> "You don't know who I am, do you?"  And they would say no and I would say
> maybe it's best that you don't..  <beg>
> That would amuse me very much.

Tee hee :-)

You mentioned before that you didn't have the hospital's postcode. I
found it with a Royal Mail search, and if you don't object I will post
it here, as it will make sure that cards aren't delayed or lost for not
having it on:

Ward 31
Leicester General Hospital
Gwendolen Road
LEICESTER
LE5 4PW
United Kingdom

Deb.

Signature

http://www.scientific-art.com

"He looked a fierce and quarrelsome cat, but claw he never would;
He only bit the ones he loved, because they tasted good." S. Greenfield

Jo Firey - 05 May 2005 05:17 GMT
> Dear everyone
>
[quoted text clipped - 9 lines]
> by someone who had it that it takes a bit of getting used to, so don't be
> discouraged if at first it doesn't come up to your expectations.

I really don't know what to expect from the implant.  But anything will be a
blessing.  I'm profoundly deaf in the ear they used and on the current loss
curve will be in the other ear as well within one to three years.  So even
awareness of sound will be a blessing.  On the high end, I don't expect to
get music back.  It would be an extremely good result to be able to use a
telephone.  Don't even know if what I hear with it will resemble the sounds
I'm used to.

I'm very much enjoying "your" candle.  But maybe we should use the
alternative name on it.  Framboises Fraiches.  Sounds so continental.

Jo
polonca12000 - 05 May 2005 22:33 GMT
Continued purrs, hugs and best wishes, we are thinking of you,
Signature

Polonca & Soncek

> Dear everyone
>
[quoted text clipped - 3 lines]
> I can only find the energy to post about twice or so a day.  So here comes
> purrs and prayers for everyone who needs it.
444444444<---- Soncek says Hi!
Christina Websell - 05 May 2005 23:47 GMT
Thank you Polonca.  You never ask for anything for yourself but are always
here for us.
May your God that you believe in bless you for that.
Tweed

> Continued purrs, hugs and best wishes, we are thinking of you,
>> Dear everyone
[quoted text clipped - 8 lines]
>> purrs and prayers for everyone who needs it.
> 444444444<---- Soncek says Hi!
Christina Websell - 05 May 2005 23:52 GMT
> Continued purrs, hugs and best wishes, we are thinking of you,
>> Dear everyone
[quoted text clipped - 8 lines]
>> purrs and prayers for everyone who needs it.
> 444444444<---- Soncek says Hi!

And I say Hi Soncek and remember how lucky you were to get your meowmie also
says Kitty and Boyfriend who both highjacked their own meowmie who never
wanted any cats at all.
Howard Berkowitz - 06 May 2005 04:46 GMT
OOOps...left off the hugs, purrs, and hugging purr with thorough nose
kiss from Mr. Clark.

When I get my car fixed, he and I are volunteering for a pet therapy
program.  Unfortunately, you are a little far for a house call.
Duke of URL - 06 May 2005 23:19 GMT
>> Dear everyone
>>
[quoted text clipped - 4 lines]
>> about twice or so a day.  So here comes purrs and prayers for
>> everyone who needs it.

> 444444444<---- Soncek says Hi!
> Continued purrs, hugs and best wishes, we are thinking of you,

Indeed it's true - this is one of the finest groups around. I was greatly
buoyed up by the support I got from everyone when I desperately needed it.
Too bad we can't distill and bottle and sell rpca tonic!
Signature

Moses.DukeOfUrl@gmail.com
Cliologist, Philanthropologist, Prothonotary Wibbler,
Paleoconservative, Surface Warrior Squid

 
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