Also keeping Kili in our thoughts and prayers. I don't know anything
about fibramtosis but I am familiar with hemochromatosis. My mother had
it. It isn't that her body cannot absorb iron; her body is absorbing
too much iron and it begins to deposit in the organs. The treatment
used to be periodical removal of blood. I do know the liver can
regenerate itself with treatment. Purrs that she has skillful doctors
and that her body responds to treatment.

Sherry

Well, we can't survive without some iron.  It sounds like she isn't
excreting as much iron as most people, as well as not properly making
use of iron in the diet, so it would be a matter of hitting the proper
balance.

The first thing they want to do is a full blood transfusion.

Apparently not everyone's body can process iron the way it should.  She
wouldn't even know she had this if she didn't have this other disease,
fibromatosis.  They are talking about removing her breasts and some ribs
because of the way the tumors attach themselves to bone.  Poor woman :(

Jill

Bountiful purrs and Bright Blessings.

--Fil

Yeah, she's not doing well.  I noticed she posted about this to rfc.  She
needs to talk to the hospital dietician.  She wasn't exactly eating like mad
before but she loved a good salad and stuff like that.  Poor girl is right!

Jill

Ginger-lyn, I just looked up your husband's condition and it sounds kind of
similar, yet a bit different.  With hemochromatosis, a person can still be
anemic, but allergic to iron, in a way.  We store iron in our system and it
doesn't come out.  It's a genetic condition, inherited by both parents, and
whatever we eat from childhood on that has an iron count, is stored as a
toxin in our liver.  Unfortunately, I thought I was a health food freak and
ate a lot of green leafy veggies, lots of shellfish, raw oysters, clams,
salads - all not knowing that this was slowly killing me because my body
treats it all as poison.

My doctor put me on a strict diet of fish and light colored COOKED veggies
(no more of my beloved salads), no steak, pork, chicken and no dairy or carb
related foods like rice, potatoes or bread.  Luckily, I really do like
veggies and my husband came home from the store tonight with asparagus,
broccoli, yellow squash, celery, carrots, peas, cauliflower and onion - all
my favorites!  I don't know what to eat first!  Ergh.......  I feel like a
herion junkie that wants to eat it all!

I'd be interested in hearing more about your husband's condition on a site
that isn't so much in doctor-speak, if you could direct me to one.

Thanks,

kili