Cat Forum / Cat Anecdotes / July 2006
Chron's Disease ...
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Monique Y. Mudama - 19 Jun 2006 22:39 GMT I seem to recall that some of the folks here have it. Could you please either post or email me privately with your experiences, resources you've found helpful, etc?
I'm a little bit in shock right now and not sure how good or bad it is that I now have a name for my problem.
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
cybercat - 19 Jun 2006 22:49 GMT > I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. It's "Crohn's Disease." I don't have it but my aunt, age 86 does.
http://www.crohns-disease-info.com/
An excerpt:
Crohn's disease is an inflammatory bowel disease, IBD for short, that causes persistent or recurring inflammation of one or more parts of the intestine. Crohn's disease can affect any part of the gastrointestinal system, from the mouth to the anus. The disease was named after Dr. Burrill Crohn, who was one of the first to describe the disease in medical literature.
There is no known cure for Crohn's disease. Even though this disease is common, it has not been talked about until recently. The causes are unknown and is not due to stress as was once thought.
Inflammatory bowel disease can occur at any age, but usually begins in the late teens or early adulthood. It is sometimes associated with medical problems outside of the intestine, including arthritis, cancer, gallstones, kidney stones, and skin conditions.
Other associated names are ileitis and enteritis.
What is Inflamed by Crohn's Disease?
Inflamed Crohn's disease affects the bowel wall from the inner to the outer lining, including muscle layers inbetween. Not only does the bowel wall become inflamed, but the disease also causes swelling of the mesentery, a fan-shaped piece of tissue connecting the small intestine to the back wall of the abdomen (the mesentery contains the main intestinal blood vessels and lymph glands).
Where does Crohn's Disease Occur?
Crohn's disease can affect any area from the mouth to the anus. About 45 percent of people diagnosed have Crohn's disease affecting the end of the il eum and the beginning of the colon. About 35 percent have it occur just in the end of the ileum. About 20 percent have the disease just in the colon. In a few patients, the disease affects the jejunum, duodenum, stomach, or esophagus. When Crohn's affects the mouth, there is almost always an associated occurrence elsewhere in the gastrointestinal tract.
Yowie - 19 Jun 2006 23:25 GMT >I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. I don't have Crohn's disease, but I though this website was useful in explaining it to me:
http://www.angelfire.com/ga/crohns/
The good news, I guess, is that its not something directly life threatening, although it still sounds mighty scary in its own right. You might find support groups for other Crohn's disease patients helpful, like alt.support.crohns-colitis (I don't know how good or bad that one is, its just an example).
Please look after yourself and know that there is always an extra purr or two handy if you need some.
*Hugs*
Yowie
Karen - 20 Jun 2006 03:02 GMT >> I seem to recall that some of the folks here have it. Could you >> please either post or email me privately with your experiences, [quoted text clipped - 20 lines] > > Yowie It took 3 colonoscopies and two years to diagnose my friend. She was on medicine for a few years, but with her first baby she had one flareup and now hasn't had one since, nor is she on medicine. You might look on www.helpforibs.com message boards as well as there is a special Chrohn's board. I think a lot of the same things apply. Not fun, but I am sure glad you have a diagnosis. I still don't have a "real" diagnosis and they will have to go down the list and real that it ISN'T anything else before I can be sure what it is. That will take forever and be highly costly :(
William Hamblen - 20 Jun 2006 04:35 GMT >You might look on www.helpforibs.com ... Keep in mind that IBS (irritable bowel syndrome) isn't the same as IBD (inflammatory bowel disease). IBS is essentially benign, although frustrating and uncomfortable. IBD aka Crohn's Disease aka Regional Enteritis, not to be an alarmist about it, can be dangerous. A coworker's girl friend has Crohn's, and she's doing OK now, despite having had quite a time of it when she was younger.
Monique Y. Mudama - 20 Jun 2006 05:30 GMT >>You might look on www.helpforibs.com ... > [quoted text clipped - 4 lines] > dangerous. A coworker's girl friend has Crohn's, and she's doing OK > now, despite having had quite a time of it when she was younger. Yeah, I'm a bit scared. But definitely clear on the difference. IBS is diagnosed in large part by the absence of disease. It's a functional problem, not a disease.
That being said, I'm familiar with the helpforibs site, and as Karen said, there's a forum specifically for crohn's patients.
 Signature monique, who spoils Oscar unmercifully
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Karen - 20 Jun 2006 15:00 GMT > >You might look on www.helpforibs.com ... > [quoted text clipped - 4 lines] > coworker's girl friend has Crohn's, and she's doing OK now, despite > having had quite a time of it when she was younger. True, but lots of people with Crohn's post there and it could be a good place to ask question. IBS is also not IBD.
Monique Y. Mudama - 20 Jun 2006 05:44 GMT > It took 3 colonoscopies and two years to diagnose my friend. She was > on medicine for a few years, but with her first baby she had one [quoted text clipped - 5 lines] > that it ISN'T anything else before I can be sure what it is. That > will take forever and be highly costly :( This again makes me wonder if the diagnosis can possibly be right so soon.
But assuming it is, you're right; at least I have a diagnosis. Purrs that you get yours diagnosed soon.
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Karen - 20 Jun 2006 15:07 GMT > > It took 3 colonoscopies and two years to diagnose my friend. She was > > on medicine for a few years, but with her first baby she had one [quoted text clipped - 8 lines] > This again makes me wonder if the diagnosis can possibly be right > so soon. I think they are just more clued in now to look for it. These three things IBS, IBD, and Chron's seem to finally be getting acknowledged. I think doctors were just pretty ignorant (and in some cases still are from what I read on the ibs board) than a few years ago. They have also gotten over shunting women off quite so much with these things. I think it's a pretty definitive diagnosis. I'd say this is a good thing because you can get right on it.
> But assuming it is, you're right; at least I have a diagnosis. > Purrs that you get yours diagnosed soon. Monique Y. Mudama - 24 Jun 2006 06:31 GMT >> This again makes me wonder if the diagnosis can possibly be right >> so soon. [quoted text clipped - 6 lines] > with these things. I think it's a pretty definitive diagnosis. I'd > say this is a good thing because you can get right on it. Maybe. My actual appt with the doctor is Monday, and I will be sure to ask him how he can be so sure.
 Signature monique, who spoils Oscar unmercifully
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Winnie - 21 Jun 2006 00:37 GMT > This again makes me wonder if the diagnosis can possibly be right > so soon. > > But assuming it is, you're right; at least I have a diagnosis. > Purrs that you get yours diagnosed soon. Are you going to see the GI doctor again? Do you own research and make a list of questions you want to ask and discuss with him. If you wonder about the quick diagnosis, talk to him about that too. Maybe something in your colonoscopy results 'clued' him to the diagnosis, or what were not found in the colonoscopy ruled out all other 'supsects'.
Just a suggestion.
Winnie
> -- > monique, who spoils Oscar unmercifully > > pictures: http://www.bounceswoosh.org/rpca Monique Y. Mudama - 21 Jun 2006 05:12 GMT > Are you going to see the GI doctor again? Do you own research and > make a list of questions you want to ask and discuss with him. If [quoted text clipped - 4 lines] > > Just a suggestion. Exactly my plan =) I have an appt with him on Monday to actually discuss the test results. I have a vague (but probably misguided) hope that he said something to the nurse in prescribing this medication to me that she took to mean Crohn's, but really miraculously I'm just fine and it was all a mistake, or a dream, or, or ... yeah. Doesn't sound plausible to me, either.
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Tanada - 20 Jun 2006 09:17 GMT > It took 3 colonoscopies and two years to diagnose my friend. She was on > medicine for a few years, but with her first baby she had one flareup [quoted text clipped - 5 lines] > before I can be sure what it is. That will take forever and be highly > costly :( Thank you. I was diagnosed with IBS w/diarhea a couple of years ago, and never bothered to see what info etc. was available online. I guess I was too embarrassed or something, like it is a stigma to have the problem. Now I have all sorts of information to go over. I'll be busy for a while with this site.
Pam S.
Monique Y. Mudama - 20 Jun 2006 14:01 GMT >> It took 3 colonoscopies and two years to diagnose my friend. She >> was on medicine for a few years, but with her first baby she had [quoted text clipped - 13 lines] > > Pam S. I found that site very helpful, but then, ultimately I guess it turns out it was the wrong site for me ... anyway, I bought the book, and I was hoping for more info than there is on the site, but no, the info's the same, although there are a few more recipes. Overall I don't think I needed to spend money on the book.
The acacia fiber rules -- it seems to be much more "dense" than other fiber supplements, so you can take less and still get a lot of fiber.
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Karen - 20 Jun 2006 15:07 GMT > > It took 3 colonoscopies and two years to diagnose my friend. She was on > > medicine for a few years, but with her first baby she had one flareup [quoted text clipped - 13 lines] > > Pam S. It's a good site and I have to say (I'm C) I think her stuff works. The people are very helpful too. I also realize, there are sure folks worse off than me out there and that is scary!
Winnie - 21 Jun 2006 00:41 GMT > It took 3 colonoscopies and two years to diagnose my friend. She was on > medicine for a few years, but with her first baby she had one flareup [quoted text clipped - 5 lines] > anything else before I can be sure what it is. That will take forever > and be highly costly :( Karen, I am sorry to hear that you don't have a diagnosis yet. Purrs you get a correct diagnosis soon. The not knowing must be very frustrating and stressful.
Winnie
Monique Y. Mudama - 20 Jun 2006 05:28 GMT >>I seem to recall that some of the folks here have it. Could you >>please either post or email me privately with your experiences, [quoted text clipped - 7 lines] > > http://www.angelfire.com/ga/crohns/ Thanks, and thanks for making me realize I had the spelling wrong! Sheesh!
> The good news, I guess, is that its not something directly life > threatening, although it still sounds mighty scary in its own right. > You might find support groups for other Crohn's disease patients > helpful, like alt.support.crohns-colitis (I don't know how good or > bad that one is, its just an example). Thanks. I'll take a look. So far the websites and whatnot seem more scary than supportive, because they seem to be talking about issues much worse than mine have been so far. I hope that's not an inevitability!
> Please look after yourself and know that there is always an extra > purr or two handy if you need some. Thank you.
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Marina - 21 Jun 2006 03:43 GMT > Thanks. I'll take a look. So far the websites and whatnot seem more > scary than supportive, because they seem to be talking about issues > much worse than mine have been so far. The www can be a mixed blessing. When my "thickened skin" was eventually diagnosed as scleroderma (Latin for "thickened skin" - who'da thunk), I looked for information on the web and found some scary stuff, too. But so far, I've been living with it OK.
 Signature Marina, Miranda and Caliban. In loving memory of Frank and Nikki. Stories and pics at http://koti.welho.com/mkurten/ Pics at http://uk.pg.photos.yahoo.com/ph/frankiennikki/ and http://community.webshots.com/user/frankiennikki
Monique Y. Mudama - 21 Jun 2006 04:04 GMT >> Thanks. I'll take a look. So far the websites and whatnot seem >> more scary than supportive, because they seem to be talking about [quoted text clipped - 4 lines] > who'da thunk), I looked for information on the web and found some > scary stuff, too. But so far, I've been living with it OK. I guess the people with the worst cases would be the ones most motivated to create websites about them ...
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Jo Firey - 21 Jun 2006 04:16 GMT >>> Thanks. I'll take a look. So far the websites and whatnot seem >>> more scary than supportive, because they seem to be talking about [quoted text clipped - 7 lines] > I guess the people with the worst cases would be the ones most > motivated to create websites about them ... True. Also people who are having problems with their care and treatment are much more likely to be represented online than those who are doing well.
Hi
Monique Y. Mudama - 21 Jun 2006 05:08 GMT > True. Also people who are having problems with their care and > treatment are much more likely to be represented online than those > who are doing well. Good point.
I just had a very long talk with my aunt in which we discussed my constant stress and how much of an impact that has on my body. As she said, "Monique, this stuff kills. You need to take care of yourself." She didn't mean GI doctors, pills, and surgery. She meant taking the time to relax and do things for myself. I know that she's right. It used to be headaches. Then back aches. Then I went to the chiro. No more back aches. Now progressively worse belly problems. I think my body is trying to tell me something, using progressively harder to ignore signals.
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Winnie - 20 Jun 2006 00:36 GMT > I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, [quoted text clipped - 7 lines] > > pictures: http://www.bounceswoosh.org/rpca I know very little about Crohn's Disease except there are groups that raise money for research in this area. Purrs continuing your way. At least you get a diagnosis.
Winnie
Monique Y. Mudama - 20 Jun 2006 05:42 GMT > I know very little about Crohn's Disease except there are groups > that raise money for research in this area. Purrs continuing your > way. At least you get a diagnosis. Thank you. Yes, it's good to have a name. I am wondering if it's right, though -- it seems most sites suggest that it's incredibly difficult to diagnose. So how can I be this "lucky"?
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Christina Websell - 20 Jun 2006 00:55 GMT >I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. At least you know what it is now. Here's a site with some useful info on it - even though it's a UK site diseases are the same the world over. I know it's not much consolation at the moment, but at least it wasn't "you-know-what." Thank goodness for that.
http://www.crohns.org.uk/
Tweed
Monique Y. Mudama - 20 Jun 2006 05:41 GMT > At least you know what it is now. Here's a site with some useful > info on it - even though it's a UK site diseases are the same the [quoted text clipped - 4 lines] > > Tweed Thank you. Definitely right; at least it's not that.
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
jXwXeXrXmXoXnXt@sonic.net - 20 Jun 2006 01:23 GMT > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. I should have thought of that, because I have an acquaintance who has Crohn's. She had a tough time for a while, but it's been in remission (I think they use that phrase) for quite a few years now, and she seems to be doing well. It can be a difficult condition, but it is certainly treatable and manageable.
Did your doctor recommend steroids? Or if not, what treatments are you considering?
I'm glad it's not life-threatening.
Purrs, Joyce
Monique Y. Mudama - 20 Jun 2006 05:39 GMT > I should have thought of that, because I have an acquaintance who > has Crohn's. She had a tough time for a while, but it's been in [quoted text clipped - 6 lines] > > I'm glad it's not life-threatening. Hope not! Some of the sites are a little scary.
I haven't spoken to my doctor yet; I got a call from his nurse in which she told me that I have Crohn's and that the doctor prescribed Asacol (mesalamine), which I am to start taking immediately. From some googling, it looks like it's not a steroid, although I'm not clear on what it is. DH picked it up from the pharmacy, and the pharmacist said that there isn't much to worry about in terms of side effects or interactions; either it helps or it doesn't.
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Cheryl - 20 Jun 2006 02:25 GMT > I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad > it is that I now have a name for my problem. First, many purrs. I know of one person who has been afflicted his entire life with this. And my niece (17) has some sort of IBD but I haven't heard them label her's Crohn's yet. I know it is an autoimmune disease, and my Shamrock had a form of IBD that the vets often compared to Crohn's. I think the long-term effects are the inability to absorb nutrients, so you feel run-down, and the inability to absorb nutrients also has long-term effects on your organs. The worst case I've seen again, was with someone who has had Crohn's since childhood, so it's not surprising that now in his late 30s, it's affected many organs. Take care of yourself, and I hope your doctors educate you on what this means. And if they don't, please do some reading, but don't get all down and let it make you depressed. I hope you feel better Monique.
 Signature Cheryl
Monique Y. Mudama - 20 Jun 2006 05:32 GMT > First, many purrs. I know of one person who has been afflicted his > entire life with this. And my niece (17) has some sort of IBD but I [quoted text clipped - 9 lines] > please do some reading, but don't get all down and let it make you > depressed. I hope you feel better Monique. Thank you. I am definitely a little freaked right now. I wonder if this does go a long way to explaining why I seem to need more sleep than others, have fairly slow muscle recovery, etc.
But I can't be too badly off -- I had a colonoscopy Thursday, went hiking w/DH Saturday, mountain biking on my own Sunday, and I biked to and from work (~12 miles each way) today. I really think I need that activity to work off my nervous energy. Otherwise I just get stressed.
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CatNipped - 20 Jun 2006 13:51 GMT >> First, many purrs. I know of one person who has been afflicted his >> entire life with this. And my niece (17) has some sort of IBD but I [quoted text clipped - 19 lines] > activity to work off my nervous energy. Otherwise I just get > stressed. I've read that exercise is recommended to help alleviate symptoms. You got that covered! ;>
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CatNipped
See all my masters at: http://www.PossiblePlaces.com/CatNipped/
Monique Y. Mudama - 21 Jun 2006 03:51 GMT >> But I can't be too badly off -- I had a colonoscopy Thursday, went >> hiking w/DH Saturday, mountain biking on my own Sunday, and I biked [quoted text clipped - 4 lines] > I've read that exercise is recommended to help alleviate symptoms. > You got that covered! ;> *grin*
I'd set myself a goal to commute to work three times this week, but I *am* feeling all that activity just a little bit, and I haven't been sleeping well (partly nerves, partly that stupid 5am sunshine, partly elevated metabolism from working out so much, which keeps me awake).
Maybe I'll decide tomorrow morning. I have a bike pack on order from Nashbar that I was hoping would be here by now =/
 Signature monique, who spoils Oscar unmercifully
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Takayuki - 20 Jun 2006 02:58 GMT >I seem to recall that some of the folks here have it. Could you >please either post or email me privately with your experiences, >resources you've found helpful, etc? > >I'm a little bit in shock right now and not sure how good or bad it is >that I now have a name for my problem. Oooh, I'm so sad that you have this, because we've lost at least one beloved poster here to it, and definitely don't want to see any more. JEM (Janice Munday) passed away almost four years ago, on July 8th, 2002:
http://obit.byles.com/obit_display.cgi?id=7165&clientid=byles&listing=Found
She seemed to have a particularly severe form of it, and IIRC, she's had to undergo operations for it since she was a child.
Monique Y. Mudama - 20 Jun 2006 05:43 GMT > Oooh, I'm so sad that you have this, because we've lost at least one > beloved poster here to it, and definitely don't want to see any [quoted text clipped - 5 lines] > She seemed to have a particularly severe form of it, and IIRC, she's > had to undergo operations for it since she was a child. Okay, now you're scaring me ...
 Signature monique, who spoils Oscar unmercifully
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Tanada - 20 Jun 2006 09:26 GMT >>Oooh, I'm so sad that you have this, because we've lost at least one >>beloved poster here to it, and definitely don't want to see any [quoted text clipped - 7 lines] > > Okay, now you're scaring me ... Purrs and hugs Monique. JEM's Chron's was diagnosed when she was quite young, if I recall correctly, and the treatments they have now are more advanced than they were when she was first diagnosed. It's a scary disorder, but you're young, in good physical and mental condition, and have an edge in being diagnosed now rather than 10-20 years ago. So hang in there and take comfort in knowing that there are new treatments for Chron's disease all the time, ahd your case isn't as severe as JEM's was.
BTW, if you ever get a chance, read JEM's stories. I think both Flippy and Dave Stevenson archived a bunch of them. Not only was she a very good writer, but JEM was very very funny. In some ways she surpassed Dave Yehuddah in her imagination and inventiveness in her writing.
Pam S. sending purrs and hugs your way
David Stevenson - 20 Jun 2006 14:04 GMT >Purrs and hugs Monique. JEM's Chron's was diagnosed when she was quite >young, if I recall correctly, and the treatments they have now are more [quoted text clipped - 4 lines] >for Chron's disease all the time, ahd your case isn't as severe as >JEM's was. I have Crohn's, but I am lucky: it is as mild as it can possibly be, and is unlikely to cause me any more problems so long as I keep taking my tablets. I also have irritable bowel syndrome [not to mention, for anyone who is interested, diabetes mellitus, blood pressure controlled by medicine, high tri-glycerides, chlorestorol controlled by medicine, eczema and chronic catarrh].
My wife, who is a few years older than me, has nothing. Very annoying.
>BTW, if you ever get a chance, read JEM's stories. I think both Flippy >and Dave Stevenson archived a bunch of them. Not only was she a very >good writer, but JEM was very very funny. In some ways she surpassed >Dave Yehuddah in her imagination and inventiveness in her writing. http://www.blakjak.demon.co.uk/sty_menu.htm#stories2 http://www.blakjak.demon.co.uk/sty_men4.htm#funny_st1
In the many hundreds of stories that one day I shall add - I intend to take a couple of weeks off sometime to deal with my site - there are at least four more, so there are four to come!
 Signature David Stevenson Storypage: http://blakjak.com/sty_menu.htm Liverpool, England, UK <cat2@blakjak.com> Emails welcome Nanki Poo: SI O+W B 12 Y L+ W++ C+ I T+ A- E H++ V- F Q P+ B+ PA+ PL SC Minke: SI W+Cp B 3 Y L W+ C++ I T A- E H++ V++ F- Q- P B PA+ PL+ SC-
Karen - 20 Jun 2006 15:15 GMT > >Purrs and hugs Monique. JEM's Chron's was diagnosed when she was quite > >young, if I recall correctly, and the treatments they have now are more [quoted text clipped - 14 lines] > My wife, who is a few years older than me, has nothing. Very > annoying. As long as she doesn't flaunt it.....
Monique Y. Mudama - 21 Jun 2006 15:58 GMT > http://www.blakjak.demon.co.uk/sty_menu.htm#stories2 > http://www.blakjak.demon.co.uk/sty_men4.htm#funny_st1 > > In the many hundreds of stories that one day I shall add - I > intend to take a couple of weeks off sometime to deal with my > site - there are at least four more, so there are four to come! Thanks. I recognize the Hei Yu bathtime story, probably from browsing Flippy's site.
Er, by the way, you have email links for her ...
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
David Stevenson - 21 Jun 2006 16:19 GMT >On 2006-06-20, David Stevenson penned: >> [quoted text clipped - 9 lines] > >Er, by the way, you have email links for her ... Noted: I shall do something about it.
 Signature David Stevenson Storypage: http://blakjak.com/sty_menu.htm Liverpool, England, UK <cat2@blakjak.com> Emails welcome Nanki Poo: SI O+W B 12 Y L+ W++ C+ I T+ A- E H++ V- F Q P+ B+ PA+ PL SC Minke: SI W+Cp B 3 Y L W+ C++ I T A- E H++ V++ F- Q- P B PA+ PL+ SC-
Monique Y. Mudama - 21 Jun 2006 03:48 GMT > Purrs and hugs Monique. JEM's Chron's was diagnosed when she was > quite young, if I recall correctly, and the treatments they have now [quoted text clipped - 4 lines] > are new treatments for Chron's disease all the time, ahd your case > isn't as severe as JEM's was. Yes ... from reading various websites, it doesn't seem like my case is anywhere near as severe as the cases they describe.
> BTW, if you ever get a chance, read JEM's stories. I think both > Flippy and Dave Stevenson archived a bunch of them. Not only was > she a very good writer, but JEM was very very funny. In some ways > she surpassed Dave Yehuddah in her imagination and inventiveness in > her writing. Thanks -- I will check them out.
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Takayuki - 21 Jun 2006 02:04 GMT >> She seemed to have a particularly severe form of it, and IIRC, she's >> had to undergo operations for it since she was a child. > >Okay, now you're scaring me ... Oops, I'm sorry! It's probably not best to respond with an obituary when someone asks about experiences with a disease!
Monique Y. Mudama - 21 Jun 2006 03:49 GMT >>Okay, now you're scaring me ... > > Oops, I'm sorry! It's probably not best to respond with an obituary > when someone asks about experiences with a disease! Ah, well. I understand -- it's what came to mind first. No worries =)
I am feeling better about the whole thing today, but I think that might be a form of denial. I definitely am anxious to speak to my doctor next Monday!
 Signature monique, who spoils Oscar unmercifully
pictures: http://www.bounceswoosh.org/rpca
Takayuki - 21 Jun 2006 05:03 GMT >Ah, well. I understand -- it's what came to mind first. No worries =) > >I am feeling better about the whole thing today, but I think that >might be a form of denial. I definitely am anxious to speak to my >doctor next Monday! Purrs that that goes well. Janice really did have just a terrible case of Crohn's, and they couldn't even figure out what was wrong with her for a long time. Your situation is a lot better, and I hope it'll keep getting better.
Monique Y. Mudama - 24 Jun 2006 06:37 GMT > Purrs that that goes well. Janice really did have just a terrible > case of Crohn's, and they couldn't even figure out what was wrong > with her for a long time. Your situation is a lot better, and I > hope it'll keep getting better. Thank you. I actually feel great right now, 95% well or something like that. I am actively working on reducing my stress, one by therapy (today we started working on my unrelenting standards -- oh boy!), and two by learning what I need in terms of downtime.
As my therapist said today, "It's like you're constantly running to keep up with your life, and you never quite catch up." That's *exactly* how my life feels. No wonder I'm stressed. That combined with "Monique, you're eating your guts. You're eating your guts. That's how serious this is."
Given how stressful every position at my company is, I suggested voluntary time management classes to my COO, and she said she will make it happen. In my new position, it is not actually possible to get everything I "should" be doing done. There's simply too much. She said that is something that happens as you take on more senior roles, and part of that role is learning how to prioritize so that the things that do need to get done are done. That makes sense, and I think training will help with that. In the meantime, my own impossible standards for myself are driving me crazy about it. But I'm working on it. I actually feel pretty un-stressed, which is amazing considering that I started this week by finding out from a nurse (who couldn't really tell me anything else) that I had Crohn's.
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Takayuki - 24 Jun 2006 07:26 GMT >Thank you. I actually feel great right now, 95% well or something >like that. I am actively working on reducing my stress, one by [quoted text clipped - 6 lines] >with "Monique, you're eating your guts. You're eating your guts. >That's how serious this is." I'm looking forward to your seeing what the doctors can do for you. I think you're right to focus on de-stressing. Crohn's I assume is something you've lived with for a while although you didn't know it, and something you'll continue to live with for a long time in the future. And I didn't even know that there were so many posters here with IBD and IBS.
>Given how stressful every position at my company is, I suggested >voluntary time management classes to my COO, and she said she will [quoted text clipped - 8 lines] >amazing considering that I started this week by finding out from a >nurse (who couldn't really tell me anything else) that I had Crohn's. I haven't really experienced this myself - time management and prioritization. It's a good point, and I think I should look into that myself.
I've been tackling those kinds of issues from a different direction up until now. When I start having problems with things getting a bit chaotic, my habit is to make a policy change or alter the relevant business process.
Anyway, I should look more into what you've said about time management. It just strikes me that I've never read a book, or taken a class or seminar on time management, although it must be pretty important.
Monique Y. Mudama - 25 Jun 2006 01:14 GMT > I'm looking forward to your seeing what the doctors can do for you. > I think you're right to focus on de-stressing. Crohn's I assume is > something you've lived with for a while although you didn't know it, > and something you'll continue to live with for a long time in the > future. And I didn't even know that there were so many posters here > with IBD and IBS. I have some suspicions about what the doctor can('t) do for me, which is why I'm so interested in lifestyle changes instead =)
My aunt suggested getting the full scoop from this GI doctor (it just today occured to me to ask DH to join me at the appointment, to make sure that between us we get all the info we need), then meeting with my regular doctor and discussing my options with her, too. My regular doctor is much more interested in maintaining my lifestyle and suggesting alternative approaches than this specialist has thus far shown himself to be.
> I haven't really experienced this myself - time management and > prioritization. It's a good point, and I think I should look into [quoted text clipped - 4 lines] > bit chaotic, my habit is to make a policy change or alter the > relevant business process. I'm not sure how that would help in the sorts of situations that pertain to my current company ... if it works, great! I'm working on a massive database that feeds all of our sites, and if there's a data problem in production, it needs to be fixed *now*. We are so swamped with these sorts of things that while our intent is to find out the reason behind as many of these problems as we can, at the moment we can only address a tiny fraction of them. But we do finally have enough people now, so slowly we are improving the underlying code while we also keep doing the quick data fixes in production. Eventually the plan is to have it so under control that we maybe have a couple of data issues a week (some issues will inevitably occur, since we are cross-referencing data from literally hundreds of companies, most of which use completely different labelling systems that we need to map together).
> Anyway, I should look more into what you've said about time > management. It just strikes me that I've never read a book, or > taken a class or seminar on time management, although it must be > pretty important. Yeah, me neither. For some reason it didn't seem so important. I think DH actually has the 7 Habits book; maybe I should take a look.
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Martha - 25 Jun 2006 01:50 GMT > My aunt suggested getting the full scoop from this GI doctor (it just > today occured to me to ask DH to join me at the appointment, to make > sure that between us we get all the info we need), I have taken a tape recorder to appointments too. It gives me time to process the information later, if need be.
Martha
Monique Y. Mudama - 25 Jun 2006 03:04 GMT >> My aunt suggested getting the full scoop from this GI doctor (it >> just today occured to me to ask DH to join me at the appointment, >> to make sure that between us we get all the info we need), > > I have taken a tape recorder to appointments too. It gives me time > to process the information later, if need be. That's a good idea. I don't think I have one anymore -- well, I had a mini tape recorder for Journalism in high school, but if I still have it it's buried in a box somewhere. Anyway, I do usually remember most of what's discussed -- if DH is there as well, between the two of us we should get it right.
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Winnie - 25 Jun 2006 03:19 GMT > My aunt suggested getting the full scoop from this GI doctor (it just > today occured to me to ask DH to join me at the appointment, to make [quoted text clipped - 6 lines] > Yeah, me neither. For some reason it didn't seem so important. I > think DH actually has the 7 Habits book; maybe I should take a look. I took the time management and the 7 Habits course. But still did not have enough time to do all the things at work. Even now that I am not working and have a lot less stress, I still run short of time to do all that needs to be done. :(
Winnie
> -- > monique, who spoils Oscar unmercifully > > pictures: http://www.bounceswoosh.org/rpca Monique Y. Mudama - 25 Jun 2006 03:39 GMT > I took the time management and the 7 Habits course. But still did > not have enough time to do all the things at work. Even now that I > am not working and have a lot less stress, I still run short of time > to do all that needs to be done. :( That was my COO's point, though -- that time management isn't just a matter of doing things more efficiently; it's also a matter of prioritizing and being okay with the fact that not everything will get done. You get the important stuff done, and you don't beat yourself up about the rest. (Okay, that's my therapist talking, not my COO.)
Today I've really gotten nothing done. Well, I watched two World Cup games, but I don't suppose that counts. I slept a lot, and felt kind of icky, and I wanted to go mountain biking, but I decided that my body wanted some rest and that I would respect that. Then it rained like crazy anyway -- apparently it hailed in Boulder, just a few miles away. The rain smelled so good. I told DH I wanted to run out in the rain naked. I didn't do that (no fence, and I'm sure the neighbors wouldn't understand), but I did go out in the rain for a little bit.
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Winnie - 25 Jun 2006 19:37 GMT > That was my COO's point, though -- that time management isn't just > a matter of doing things more efficiently; it's also a matter of > prioritizing and being okay with the fact that not everything will > get done. You get the important stuff done, and you don't beat > yourself up about the rest. (Okay, that's my therapist talking, > not my COO.) On yes, it is coming back now - stuff I learned from 7 habits. They divided work into several categories. One is emergency stuff - that needed to be done right away, and the last is non essential stuff. I learned that we tend to do the non essential stuff when they are more interesting.
> Today I've really gotten nothing done. Well, I watched two World > Cup games, but I don't suppose that counts. I slept a lot, and felt [quoted text clipped - 5 lines] > the neighbors wouldn't understand), but I did go out in the rain for > a little bit. Yesterday, I spent a whole afternoon getting my computer back to where it was before the hard drive's death..A friend installed a CD writer for me so I can backup my stuff. He also set it up so now I can input Chinse characters. It was a beautiful day, and I didn't even step outside. Good thing today is just as beautiful. I finally went to the supermarket on my way home from church. Seems I always run out of produce. It is a good thing if it means I am eating a lot of veggie and fruits. Got some fresh blueberries. Time for another blueberry smoothie. I run out of yogurt very fast too because of all the smoothies I have been making.
Winnie
> -- > monique, who spoils Oscar unmercifully > > pictures: http://www.bounceswoosh.org/rpca polonca12000 - 24 Jun 2006 14:26 GMT > Thank you. I actually feel great right now, 95% well or something > like that. I am actively working on reducing my stress, one by [quoted text clipped - 19 lines] > amazing considering that I started this week by finding out from a > nurse (who couldn't really tell me anything else) that I had Crohn's. Lots and lots of calming purrs and hugs for you, Monique, Polonca and Soncek
Winnie - 24 Jun 2006 14:45 GMT > Thank you. I actually feel great right now, 95% well or something > like that. I am actively working on reducing my stress, one by [quoted text clipped - 19 lines] > amazing considering that I started this week by finding out from a > nurse (who couldn't really tell me anything else) that I had Crohn's. I was surprised that it was the nurse that told you the diagnosis, and over the phone. Usually it is the doctor that inform the patient face to face. But maybe your doctor wanted you to go on the medication ASAP without waiting for an appointment to see him.
Senior positions can be very demanding and stressful. Guess that was why I never got to be in a senior position after all those years with the company. Yesterday I ran into a senior manager I reported to. He was also let go during the massive layoff a few years back. Now he works for the government. I think he wishes he is retired like me. But then governement positions tend to be less stressful than hi tech. Just more politics.
Winnie
> -- > monique, who spoils Oscar unmercifully > > pictures: http://www.bounceswoosh.org/rpca Monique Y. Mudama - 25 Jun 2006 00:42 GMT > I was surprised that it was the nurse that told you the diagnosis, > and over the phone. Usually it is the doctor that inform the patient > face to face. But maybe your doctor wanted you to go on the > medication ASAP without waiting for an appointment to see him. Yeah, it seemed awfully weird to me, too. I figure the same thing, but then couldn't he have taken a moment to call me himself, rather than putting the responsibility off on the nurse? Meh.
> Senior positions can be very demanding and stressful. Guess that was > why I never got to be in a senior position after all those years [quoted text clipped - 3 lines] > like me. But then governement positions tend to be less stressful > than hi tech. Just more politics. My job really isn't all that senior, but it requires that kind of decision making process. I'm in several meetings a day, and I get tons of emails and assignments. On top of that, the three of us working on this system are trying to improve it so that in the future we'll have less of the problems that lead to all of this -- so time management is definitely an issue.
At least I'm never bored! Honestly, I do like what I'm doing right now, very much. I just need to learn some skills to deal with it. Some people say to reserve a set block of time for emails, and other than that not to touch them. Sorry, that won't work -- I get emails all the time that need to be addressed in minutes, not hours. I did turn off my email notification, though, so that I don't lose my train of thought every time I get an email.
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badwilson - 20 Jun 2006 09:46 GMT > I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. I'm sorry to hear this, Monique. Crohn's sucks, but at least you know what you're dealing with and it's nothing worse. I don't have any info on it, except that I know one guy who I went to aviation college with got diagnosed with Crohn's a few years after graduation and it ended his flying career because he couldn't pass his medical anymore. But this was almost 15 years ago and I heard they have much better treatments now. Hugs and purrs,
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Mishi - 20 Jun 2006 11:48 GMT >> I seem to recall that some of the folks here have it. Could you >> please either post or email me privately with your experiences, [quoted text clipped - 11 lines] >now. >Hugs and purrs, Hi Monique,
One of the newer treatments for Crohn's is Remicade - it is also used in rheumatoid arthritis. Here is a link to an article about it: http://www.fda.gov/bbs/topics/NEWS/NEW00651.html
Howard will be able to give you more info on the drugs out there, but I have heard that this works very well.
Mishi
Monique Y. Mudama - 21 Jun 2006 03:58 GMT > Hi Monique, > [quoted text clipped - 4 lines] > Howard will be able to give you more info on the drugs out there, > but I have heard that this works very well. Thanks -- it sounds like a treatment for much worse problems than I have, so far, fortunately!
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Monique Y. Mudama - 21 Jun 2006 03:56 GMT >> I seem to recall that some of the folks here have it. Could you >> please either post or email me privately with your experiences, [quoted text clipped - 10 lines] > anymore. But this was almost 15 years ago and I heard they have > much better treatments now. Hugs and purrs, Well, it's really not that bad right now, I don't think. Hopefully it won't ever be.
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CatNipped - 20 Jun 2006 13:46 GMT >I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. Monique, maybe you should talk to a nutritionist who is familiar with this disease before going on medication. I've heard some people have had good results with diet alone.
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CatNipped
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Winnie - 21 Jun 2006 00:46 GMT > Monique, maybe you should talk to a nutritionist who is familiar with this > disease before going on medication. I've heard some people have had good > results with diet alone. I second that. Even while you are on medication, getting the proper diet will only help. I am a believer of what you eat, the portion sizes, and the frequency, all help with GI problems.
Winnie
P.S. Just heard on the news that Ontario may make it easier for the public to contact a dietician or nutrionist by e-mail or phone. This is part of the plan to combat the rising obseity in the province.
> -- > [quoted text clipped - 8 lines] > > > > pictures: http://www.bounceswoosh.org/rpca Monique Y. Mudama - 21 Jun 2006 03:56 GMT > I second that. Even while you are on medication, getting the proper > diet will only help. I am a believer of what you eat, the portion > sizes, and the frequency, all help with GI problems. I am sure that's true.
> P.S. Just heard on the news that Ontario may make it easier for the > public to contact a dietician or nutrionist by e-mail or phone. > This is part of the plan to combat the rising obseity in the > province. Nice!
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Monique Y. Mudama - 21 Jun 2006 03:55 GMT >>I seem to recall that some of the folks here have it. Could you >>please either post or email me privately with your experiences, [quoted text clipped - 6 lines] > with this disease before going on medication. I've heard some > people have had good results with diet alone. First, I'm going to talk to the doctor and try to get him to tell me why he decided it's Crohn's, the purpose of the medication, etc.
I have this vague idea that the medication is not to control symptoms, but actually to prevent further damage to the intestines, in which case it might not be a good idea to stop on the theory that "it feels okay now."
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Enfilade - 21 Jun 2006 13:05 GMT > First, I'm going to talk to the doctor and try to get him to tell me > why he decided it's Crohn's, the purpose of the medication, etc. [quoted text clipped - 3 lines] > case it might not be a good idea to stop on the theory that "it feels > okay now." A very wise decision. You need to learn all the aspects of your meds before you decide whether or not to keep taking them.
Again, even though Effexor's (possibly) damaged my memory, if I ever thought I was going to be dangerous to live with again I would take it again, for the sake of DP and the kitties. That tradeoff is worth it to me. THough first, I think I would try some other drug.
Now that you know what it is, you can learn how to go about treating it. Purrs.
And purrs for Karen. It took the doctors about six months to diagnose my ulcers, since I was also experiencing lactose-intolerence (which I'd never had before the onset of the ulcers) so, even though the medication was fixing the ulcers, every time I felt I could eat, I'd have milk and make myself sick all over again. Helluva way to lose 30 pounds. It took an offhand comment from the doctor to get me to try quitting all dairy and suddenly I was getting better--a LOT better--fast.
--Fil
Winnie - 21 Jun 2006 15:23 GMT > And purrs for Karen. It took the doctors about six months to diagnose > my ulcers, since I was also experiencing lactose-intolerence (which I'd [quoted text clipped - 6 lines] > > --Fil
>From what I've read, avoiding all diary products were recommended for a lot of GI problems, and also allergies. Now I drink fortified soy milk instead of milk as suggested by a nutritionist. The only diary product I eat is yogurt.
Winnie
CatNipped - 20 Jun 2006 13:46 GMT Oh, and I forgot to add lots of purrs!!
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CatNipped
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>I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. Marina - 20 Jun 2006 15:16 GMT > I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. Well, at least you know what it is now. Can't help in any way since I don't know anyone with this disease, but we are sending purrs that you can figure this out.
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polonca12000 - 20 Jun 2006 22:26 GMT > I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. Lots and lots of purrs and best wishes, Polonca and Soncek
Sam - 22 Jun 2006 02:53 GMT > I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. Ouch! Sorry to hear that but at least you have a definitive diagnosis. Seems that you've gotten lots of good advice from the group. Purrs for you to feel better soon.
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Dee - 08 Jul 2006 15:34 GMT > I seem to recall that some of the folks here have it. Could you > please either post or email me privately with your experiences, > resources you've found helpful, etc? > > I'm a little bit in shock right now and not sure how good or bad it is > that I now have a name for my problem. Howdy there Monique :)
I have crohn's disease...going on about 20 years now! It is indeed a serious disease, and please don't take it as anything less, but don't freak out! From reading one of your previous posts I know that one very, very important fact has already been made clear to you - stress'll kill ya! There are alot of treatments, and more are becoming available all of the time. Unfortunately it's not known exactly what causes crohn's. While it is known that it has an adverse effect on the immune system, the new thought on the matter is that it may actually be related to your immune system having been damaged beforehand. You listed alot of ailments that you've had over the years ...me too, so that seems to make sense.
I'd really like for you to contact me at powersd@gmail.com (I don't get mail at this addy.) I may be able to help to explain what some of your medications are, as well as alternate treatments you might seek.
I'm posting this as "on topic" because by beloved h0p, who many here are familiar with, also had inflammatory bowel disease and took many of the same medications that I do! Again, please mail me...we'll chat crohn's *grin* For now...do things that make you feel happy and laugh as often as you can.
Dee
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