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Cinders meets an alien

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John F. Eldredge - 20 Sep 2004 05:06 GMT
I was recently diagnosed with sleep apnea.  This is a medical
condition where you periodically stop breathing.  There are several
possible causes, but, in my case, I apparently have an inherited
tendency for my windpipe to "relax" too thoroughly when I am asleep,
collapsing all of the way shut.  The result is that I cycle between
normal breathing, not breathing, and rapid breathing (forcing the
windpipe open again).  This doesn't happen when I am awake.

The main problem with this is that it prevents me from getting deep
sleep, and the resultant stress aggravates other medical conditions
such as high blood pressure.  This used to be treated with surgery,
but they now prescribe the use of a CPAP (Continuous Positive Airway
Pressure) machine, which blows air into my nose to keep the air
pressure in my lungs high enough to keep the windpipe open.

When I go to bed, I have to wear a mask, somewhat resembling a blue
rubber pig snout, that fits over my nose and is connected by a hose
to the CPAP machine.  A net of elastic webbing fits over my head to
hold the mask on, and makes me look somewhat like the villain in a
pro wrestling match.

I got the equipment about a week ago, and Cinders was understandably
rather wary of my new appearance for a couple of days.  She would get
up on the bed, but only at the foot end.  Now, she has resumed coming
up to the head end of the bed to be petted, and I just hope that she
doesn't ever get ideas about playing "hunt the snake" with my
breathing hose.

Signature

John F. Eldredge -- john@jfeldredge.com
PGP key available from http://pgp.mit.edu
"Reserve your right to think, for even to think wrongly is better
than not to think at all." -- Hypatia of Alexandria

O J - 20 Sep 2004 06:12 GMT
---------------------<snip>----------------------
>When I go to bed, I have to wear a mask, somewhat resembling a blue
>rubber pig snout, that fits over my nose and is connected by a hose
>to the CPAP machine.  A net of elastic webbing fits over my head to
>hold the mask on, and makes me look somewhat like the villain in a
>pro wrestling match.
---------------------<snip>----------------------

I've had to use a CPAP machine for several years now. In time, you
won't even know it's there.  Fortunately, my Lady Jane Grey still
loves me and lays on my chest most nights.  I still get to fall asleep
while getting my favorite type of kitty loving, beard snuggles.

A piece of advice if you find it cumbersome to breath when the machine
wants you to.  The prescription for the device is usually written as
something like 12, 6, 4. The first is the high pressure, the second
the low pressure number (in pounds/square inch for our international
friends), and the last is usually the frequency at which the machine
tries to get you to breathe.  You may safely turn the frequency
setting to off and your body will regulate your breathing.  Try it
only if you are troubled by using the machine's breathing cycle.

Aarrrggggh! (Still a couple of hours left of ITLAPD in CA's pacific
daylight savings time)
O J
Howard Berkowitz - 21 Sep 2004 00:40 GMT
> ---------------------<snip>----------------------
> >When I go to bed, I have to wear a mask, somewhat resembling a blue
[quoted text clipped - 17 lines]
> setting to off and your body will regulate your breathing.  Try it
> only if you are troubled by using the machine's breathing cycle.

Sounds like you are describing at least a BiPAP machine, and possibly a
demand ventilators. Standard CPAPs don;t try to set breathing.
O J - 21 Sep 2004 15:45 GMT
>Sounds like you are describing at least a BiPAP machine, and possibly a
>demand ventilators. Standard CPAPs don;t try to set breathing.

Since I looked it up, I now know that 'CPAP' stands for Continuous
Positive Airway Pressure.  Mine *is* a Bi-PAP machine.  It has
separate pressure settings for breathing in and breathing out and an
option to set a minimum breathing rate.  You're the first person I've
met in the health care field who seemed to know the difference.  My
compliments and thanks for the heads-up.  Everyone else seems to use
the term CPAP as a catch-all word for any pressure system to prevent
apnea.

Regards and Purrs,
O J
jXwXeXrXmXoXnXt@sonic.net - 21 Sep 2004 20:15 GMT
> Since I looked it up, I now know that 'CPAP' stands for Continuous
> Positive Airway Pressure.  Mine *is* a Bi-PAP machine.  It has
> separate pressure settings for breathing in and breathing out and an
> option to set a minimum breathing rate.

During my sleep study, they tried both a CPAP and a Bi-PAP on me to see
which would work best. I had a terrible time with the Bi-PAP - it was
"breathing" faster than I did. So it would start trying to force air into
my nose before I was finished exhaling the previous breath. Naturally,
this disturbed my sleep quite a bit.

Of course, this was in a sleep clinic with technicians at the controls.
When you have your own Bi-PAP, can you set the pace of the breathing to
match your own?

Joyce
Howard Berkowitz - 22 Sep 2004 06:25 GMT
>  > Since I looked it up, I now know that 'CPAP' stands for Continuous
>  > Positive Airway Pressure.  Mine *is* a Bi-PAP machine.  It has
[quoted text clipped - 12 lines]
>
> Joyce

Kind of two answers. First, you can train yourself to work with forced
air, as that's a method used for military high-performance pilots --
they get forced air and have to consciously exhale.

I can't speak to BiPAP machines. The sort of ventilator used in ICU
definitely can be set to the physiological response of the patient --
not a strict timer as much as pressure or volume in the system.  A
forced rate generally is only used with comatose patients.  When you
start forcing the rate, additional, highly specialized variables come
into play.  Ventilator orders are not simple to write.
jXwXeXrXmXoXnXt@sonic.net - 22 Sep 2004 10:34 GMT
> I can't speak to BiPAP machines. The sort of ventilator used in ICU
> definitely can be set to the physiological response of the patient --
> not a strict timer as much as pressure or volume in the system.  A
> forced rate generally is only used with comatose patients.

They claimed the BiPAP would respond to my breathing pace, and alternate
blowing and not blowing the air accordingly - but it felt forced to me.
When it started blowing air into my nose in the middle of my exhale, I
found it hard to believe that it was "responding to my breathing pace."
Maybe I could have gotten used to it, but fortunately I got a CPAP instead,
so I didn't have to find out.

Joyce
Howard Berkowitz - 23 Sep 2004 06:21 GMT
>  > I can't speak to BiPAP machines. The sort of ventilator used in ICU
>  > definitely can be set to the physiological response of the patient --
[quoted text clipped - 8 lines]
> instead,
> so I didn't have to find out.

I understand the physiology of a full-capability ventilator well enough
to design software to monitor them, but prescribing anything that either
forces breathing or responds on demands takes extreme skill. There are
all sorts of subtle factors that need to be considered to set the
triggers, the amount of air, etc.

I will admit that I giggle a bit whenever I see one of the parameters,
Auto-PEEP. (OK, it's positive end expiratory pressure, and it gets VERY
complicated).
Howard Berkowitz - 22 Sep 2004 06:19 GMT
> >Sounds like you are describing at least a BiPAP machine, and possibly a
> >demand ventilators. Standard CPAPs don;t try to set breathing.
[quoted text clipped - 10 lines]
> Regards and Purrs,
> O J

If it has the option to force a breathing rate, it's more than a usual
BiPAP and getting close to a hospital-grade ventilator. A ventilator has
to be fairly intelligent to know when to force a breath for a
potentially conscious patient - that can be quite unpleasant unless you
are trained to do it. There are a great number of knobs on a hospital
ventilator, but the basics would be a timer, coupled with either a
pressure or volume sensor.

It sounds as if it would be useful to get a respiratory therapist or
chest physician to go over your treatment plan in general.
Takayuki - 20 Sep 2004 07:56 GMT
>I was recently diagnosed with sleep apnea.  This is a medical
>condition where you periodically stop breathing.

The CPAP sounds like a clever device!  I'll have to ask my father if
he's ever considered it.  He's a loud snorer, and has very obvious
sleep apnea.  I don't know if it's caused him to suffer from insomnia,
but my mother would have trouble sleeping, what with his snoring, then
stopping, making choking sounds, and starting up again.  These days,
they sleep very far from each other, on opposite wings of their
residence, and with their hardwood doors, nobody can hear a thing.
Problem solved?  Well, maybe not quite - I don't want my dad to wake
up dead. :)
O J - 20 Sep 2004 08:10 GMT
>>I was recently diagnosed with sleep apnea.  This is a medical
>>condition where you periodically stop breathing.
[quoted text clipped - 8 lines]
>Problem solved?  Well, maybe not quite - I don't want my dad to wake
>up dead. :)

Your description is classic for apnea. Your dad needs to get himself
on one of these without delay.  It's covered by my health insurance,
so maybe your father will get that benefit if he's covered.
Seriously, he's risking heart attack and stroke, not to mention
falling asleep while driving.

Regards and Purrs,
O J
Takayuki - 20 Sep 2004 08:23 GMT
>Your description is classic for apnea. Your dad needs to get himself
>on one of these without delay.  It's covered by my health insurance,
>so maybe your father will get that benefit if he's covered.
>Seriously, he's risking heart attack and stroke, not to mention
>falling asleep while driving.

I'll be sure to ask him what he's doing about his condition.  I'll be
sure to mention the heart attack and stroke thing - the scarier the
argument, the better it works on him.

He's been like that for a long time.  I remember once we were on a
flight together, and I mentioned that he was snoring during part of
the flight.  He seemed concerned all of a sudden, and asked me if it
was terribly loud.  I told him that I could hear it over the engines.
From the bathroom.  With the door closed.  While the toilet was
flushing. :)
polonca12000 - 20 Sep 2004 11:58 GMT
Lots of purrs and best wishes that you have no more trouble breathing and
that Cinders accepts the mask (and leaves it alone) really soon,
Signature

Polonca & Soncek

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[quoted text clipped - 6 lines]
> doesn't ever get ideas about playing "hunt the snake" with my
> breathing hose.
Annie Wxill - 20 Sep 2004 15:44 GMT
...  Now, she has resumed coming
> up to the head end of the bed to be petted, and I just hope that she
> doesn't ever get ideas about playing "hunt the snake" with my
> breathing hose.
...> John F. Eldredge -- john@jfeldredge.com

I hope the breathing machine works for you.  I bet you'll appreciate getting
a good sleep.
Does it restrict rolling over so that you can change your sleeping position?
Well, I guess that won't matter, anyway because when you sleep with a cat,
the cat does that.
Annie
John F. Eldredge - 21 Sep 2004 04:49 GMT
>...  Now, she has resumed coming
>> up to the head end of the bed to be petted, and I just hope that
[quoted text clipped - 7 lines]
>position? Well, I guess that won't matter, anyway because when you
>sleep with a cat,  the cat does that.

I've got enough hose length to be able to roll over.  The main
problem that I have had so far is that, when I shift position, the
mask sometimes moves slightly away from my face, resulting in a cool
breeze blowing on my face (distracting) or a whistling sound (even
more distracting).  The only solution that I have found so far is to
fasten the straps tightly, which produces a third type of
distraction.

Signature

John F. Eldredge -- john@jfeldredge.com
PGP key available from http://pgp.mit.edu
"Reserve your right to think, for even to think wrongly is better
than not to think at all." -- Hypatia of Alexandria

Howard Berkowitz - 21 Sep 2004 06:26 GMT
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[quoted text clipped - 18 lines]
> fasten the straps tightly, which produces a third type of
> distraction.

If you have a gel mask, it can be put in hot water and then applied so
that it molds to your face. With time, it becomes pretty automatic to
adjust it -- my mask actually is broken at the upper headstrap part, but
I've adapted so that I get adequate air, until I get a replacement.
Howard Berkowitz - 21 Sep 2004 06:26 GMT
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[quoted text clipped - 18 lines]
> fasten the straps tightly, which produces a third type of
> distraction.

If you have a gel mask, it can be put in hot water and then applied so
that it molds to your face. With time, it becomes pretty automatic to
adjust it -- my mask actually is broken at the upper headstrap part, but
I've adapted so that I get adequate air, until I get a replacement.
jXwXeXrXmXoXnXt@sonic.net - 21 Sep 2004 20:10 GMT
> I've got enough hose length to be able to roll over.  The main
> problem that I have had so far is that, when I shift position, the
> mask sometimes moves slightly away from my face, resulting in a cool
> breeze blowing on my face (distracting) or a whistling sound (even
> more distracting).

Yes, I remember that from sleeping with the cpap. I woke up tons of
times from all that disturbance.

> The only solution that I have found so far is to
> fasten the straps tightly, which produces a third type of
> distraction.

Known as a "headache". :) When I slept with the straps too tight, I'd
get a big headache from it. Also, deep red welts on the sides of my nose
from where the mask was digging in too tightly. It was a constant struggle
between too loose and too tight.

Joyce
Howard Berkowitz - 21 Sep 2004 06:24 GMT
> ...  Now, she has resumed coming
> > up to the head end of the bed to be petted, and I just hope that she
[quoted text clipped - 11 lines]
> the cat does that.
> Annie

I use one as well. The trick in keeping it from tangling when you roll
over is to turn the facepiece so that the hose goes over your forehead
and straight to the machine (literally over -- it's sticking out from in
front of your nose, so it won't make contact with your head).
bonbon - 21 Sep 2004 06:30 GMT
<snip>

>I got the equipment about a week ago, and Cinders was understandably
>rather wary of my new appearance for a couple of days.  

That's a terrible feeling too isn't it?   I can't wear my cat ears
inside the house at all anymore, because my little Darla just
absolutely comes unglued.

>She would get
>up on the bed, but only at the foot end.  Now, she has resumed coming
>up to the head end of the bed to be petted,

>and I just hope that she doesn't ever get ideas about playing "hunt the snake" with my
>breathing hose.

I know what my Marley Anne would do with it.  She'd promptly sharpen
her claws on it.  She likes to sharpen on the strangest
things......especially the vacuum cleaner hose, but the tires of a
parked bicycle or the bottoms of any shoes will also do nicely.

Take care of yourself John F. Eldredge, and sweet dreams!  We all need
our R.E.M.

-bonbon
SUQKRT - 21 Sep 2004 18:35 GMT
In article

><snip>

John I hope Cinders adjusts and that you get a good nights sleep.
Suz
Macmoosette
Thank Heavens There's Only One
=^..^=   =^..^=   =^..^=   =^..^=  =^..^=  =^..^=

Waiting for inspiration. Please hold while I contemplate my navel.

|\__/|
(=':'=)
(")_(")
jXwXeXrXmXoXnXt@sonic.net - 21 Sep 2004 20:07 GMT
> When I go to bed, I have to wear a mask, somewhat resembling a blue
> rubber pig snout, that fits over my nose and is connected by a hose
> to the CPAP machine.  A net of elastic webbing fits over my head to
> hold the mask on, and makes me look somewhat like the villain in a
> pro wrestling match.

Six years ago I was diagnosed with mild sleep apnea and was prescribed
a CPAP as well. On the first night I used it at home, Roxy - who was about
6 months old - sat across the room from me, kind of leaning backwards,
with a shocked look on her face. I mean, there I was, wearing this mask,
with a long hose connecting to a noisy machine. She might have thought
I was wearing a vacuum cleaner on my face. :) So she was understandably
alarmed. Over the months, though, both she and Smudge got quite used to
it - and no, John, there were no "hunt the snake" games. :)

Over the next few years, I tried sleeping with and without the CPAP, and
I found that my quality of sleep was about the same either way. There's
a certain awkwardness factor that comes with having a vacuum cleaner on
your face, but if your apnea is bad enough, the benefits far, far outweigh
the inconvenience. For me, though, I think they more or less balanced
each other out. I'd wake up with neckaches and backaches from sleeping in
odd positions, and from tensing up in response to the tangled hose and
other problems - and that interfered with my sleep as much as the extra
air pressure improved it. The severity of my apnea was only slightly
above the lowest that is clinically treatable, and in the end I stopped
using the machine.

Joyce
Howard Berkowitz - 22 Sep 2004 06:20 GMT
>  > When I go to bed, I have to wear a mask, somewhat resembling a blue
>  > rubber pig snout, that fits over my nose and is connected by a hose
[quoted text clipped - 22 lines]
> above the lowest that is clinically treatable, and in the end I stopped
> using the machine.

If you want to get REALLY strange looks, wear it, using a battery pack,
on a transoceanic flight. I'm definitely glad I was in business class;
there probably would have been no way to set it up in coach.

The cats have always ignored it, unless the hose comes loose and
directly gooses them with an air blast.
LOL - 22 Sep 2004 06:47 GMT
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[quoted text clipped - 6 lines]
> normal breathing, not breathing, and rapid breathing (forcing the
> windpipe open again).  This doesn't happen when I am awake.

(snippety)

Purrs for peaceful sleep for you and Cinders!
------
Krista
Kajikit - 22 Sep 2004 13:06 GMT
John F. Eldredge had something important to tell us on Sun, 19 Sep
2004 23:06:54 -0500:

>I was recently diagnosed with sleep apnea.  This is a medical
>condition where you periodically stop breathing.  There are several
>possible causes, but, in my case, I apparently have an inherited

>I got the equipment about a week ago, and Cinders was understandably
>rather wary of my new appearance for a couple of days.  She would get
>up on the bed, but only at the foot end.  Now, she has resumed coming
>up to the head end of the bed to be petted, and I just hope that she
>doesn't ever get ideas about playing "hunt the snake" with my
>breathing hose.

I'm sure Cinders will get used to it, and I hope you will too!
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Sherry - 25 Sep 2004 08:52 GMT
>I was recently diagnosed with sleep apnea.  This is a medical
>condition where you periodically stop breathing.  There are several
>possible causes, but, in my case, I apparently have an inherited
>tendency for my windpipe to "relax" too thoroughly when I am asleep,

Good luck with the machine. I understand from people who have used it, it has
been almost life-changing for them. They feel so much better.
 
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