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Cat Forum / Cat Anecdotes / August 2004Good News, We Hope: OT, Probably Long, Boring and all the other warnings
We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) today, and he said that he doesn't think that Rob's tumor is coming back. However, they're having Rob's MRI films reviewed by a group of specialists this afternoon, and we'll find out what they say tomorrow. If they agree with Dr Ewend, Rob will be put back on a course of Temodar for as long as he can tolerate it, up to 12 months, just to make sure the stuff is good and dead. If they decide that it is warranted, a biopsy will be done to see if it is the same type of tumor as before, and chemo will be decided on based on the biopsy. Either way, it looks a lot better than we were afraid of. Your purrs, prayers, good thoughts, and blessings have struck again. Thank you everyone. Pam, Rob, and the Fayetteville Seven >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) >today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > >Pam, Rob, and the Fayetteville Seven Oh that *is* good news! Continued purrs for the best possible outcome! Jeanne Hedge, as directed by Natasha ============ http://www.jhedge.com Yay! HapPy DaNCe :-) Purrs continuing for everything to turn out fine. -- Britta Sandpaper kisses, a cuddle and a purr. I have an alarm clock that's covered in fur! Check out pictures of Vino at: http://photos.yahoo.com/badwilson click on the Vino album > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven Purrs and Prayers that the news continues to be good and then better and then the best!!! Charleen, Mr. Pumpkin, Aggie Marble, Victor Velcro >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) >today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > >Pam, Rob, and the Fayetteville Seven It is good to hear some positive news. Many, many purrs and prayers for Rob to beat Old Man Cancer for good. -- CATherine > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven That is great news. I will send extra purrs that they are right and it is gone. >in article P7UUc.2231$2L3.822@newsread3.news.atl.earthlink.net, Tanada >at [quoted text clipped - 18 lines] >is >gone. Sounds good, but we'll keep purring. Suz Macmoosette Thank Heavens There's Only One =^..^= =^..^= =^..^= =^..^= =^..^= =^..^= Waiting for inspiration. Please hold while I contemplate my navel. |\__/| (=':'=) (")_(") >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) >today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 8 lines] >a lot better than we were afraid of. Your purrs, prayers, good >thoughts, and blessings have struck again. Thank you everyone. Sending some extra strong meatloaf purrs that the specialists agree with Dr Ewend.  SignatureSteve Touchstone, faithful servant of Sammy, Little Bit and Rocky stouchst@JUNKsirinet.net [remove Junk for email] Home Page: http://www.sirinet.net/~stouchst/index.html Cat Pix: http://www.sirinet.net/~stouchst/animals.html > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 8 lines] > a lot better than we were afraid of. Your purrs, prayers, good > thoughts, and blessings have struck again. Thank you everyone. That does sound hopeful We are still purring. SignatureMarina, Frank and Nikki Email marina (dot) kurten (at) pp (dot) inet (dot) fi Pics at http://uk.f1.pg.photos.yahoo.com/frankiennikki > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven Purrs and prayers continuing for a good outcome. Sam > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven I'm guessing at this point pretty much anything would be so much better than you were afraid of. I hope and pray and purr that Dr Ewend is right. Sometimes the good guys do win. Jo >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) >today, and he said that he doesn't think that Rob's tumor is coming >back ---------------------<snip>---------------------- That *is* good news. Thanks for sharing it with us. Regards and Purrs, O J > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven That does sound like good news, Pam! I'm so glad. We are sending our best purrs that the outlook continues to be better than you expect. ------ Krista OT, okay. Long, somewhat. Boring? Definitely not! It sounds like wonderful news, and we'll keep the prayers and purrs coming to keep it that way! -- Joy Owned and operated by Lindy and Skeeter > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven That's excellent news Pam, I'm so pleased for you all. Jeanette > and chemo will be decided on based on the biopsy. Either way, it looks > a lot better than we were afraid of. Your purrs, prayers, good > thoughts, and blessings have struck again. Thank you everyone. I'm very glad to hear this. SignatureVictor Martinez Owned and operated by the Fantastic Seven (TM) Send your spam here: uce@ftc.gov Email me here: pistorLITTER@BOXaustin.rr.com >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) >today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > >Pam, Rob, and the Fayetteville Seven That is good news!! We're still sending purrs and prayers that Dr. Ewend is right about the tumor. -- Nan A wise man talks because he has something to say; a fool talks because he has to say something. Hugs, Pam, I'm really so glad to hear the good news!!!!Been thinking of ya'll -- purrs and purrayers still a'comin' -- give all your family our best! Christine > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) >today, and he said that he doesn't think that Rob's tumor is coming >back. So glad to hear this optimistic report!! Purrs and fingers crossed that more good news is on the way. We learned this past weekend that my brother's cancer has definitely returned. He went through radiation treatment the first time and everything seemed A-OK. Now that it's back, the doctor says his body can't take radiation any more and he'll have chemo this time instead. So we understand full well the ordeal and anxiety you and Rob have been through. We'll be thinking of you all. Jeanne > >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > >today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 11 lines] > > Jeannne Jeanne, Our thoughts, prayers and purrs are with your brother and your family as well. Charleen <snip> > We learned this past weekend that my brother's cancer has definitely >returned. He went through radiation treatment the first time and [quoted text clipped - 4 lines] > > Jeanne Purrs for your brother (and the whole family) to beat the big C this time around. SignatureSteve Touchstone, faithful servant of Sammy, Little Bit and Rocky stouchst@JUNKsirinet.net [remove Junk for email] Home Page: http://www.sirinet.net/~stouchst/index.html Cat Pix: http://www.sirinet.net/~stouchst/animals.html > >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > >today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 9 lines] > So we understand full well the ordeal and anxiety you and Rob have > been through. We'll be thinking of you all. I don't know how much experience you have had with chemo, but it's important to realize that many people think it always has horrible side effects. Yes, some forms do, but there are constantly less toxic chemotherapeutic agents, as well as ways to manage the side effects. Every case is different. To put it somewhat in context, when Clifford (RB) was suddenly diagnosed with advanced bladder cancer, noticeable mostly that his kitten-like activity level had fallen off from his 17th birthday some months prior, I discussed alternatives with several veterinary oncologiets. When they told me that the most effective chemotherapeutic agent for cats was cisplatin with radiation, I almost gave up on the spot, because cisplatin has a pretty bad side effect profile in humans. They quickly reassured me that cats tolerated it far better than humans. He was not strong enough to go directly to that therapy, so we started him on measures that both can shrink the tumor, conincidentally controlling discomfort: piroxicam and prednisone. Things improved for a short number of weeks, but then things relapsed. Still, given his overall great health, I felt it was a reasonable strategy. The end was very sudden. > We learned this past weekend that my brother's cancer has definitely > returned. He went through radiation treatment the first time and > everything seemed A-OK. Now that it's back, the doctor says his body > can't take radiation any more and he'll have chemo this time instead. > So we understand full well the ordeal and anxiety you and Rob have > been through. We'll be thinking of you all. Purrs and healthy thoughts and wishes for your brother. Alt.support.cancer is really good about both information and support for those with cancer and their families. That group is almost as important for me to follow as this one. Pam S. grateful for all the support and friends here in RPCA Lots of purrs and best wishes for your brother, Jeanne, and hugs for his worried family, SignaturePolonca & Soncek <snip> > We learned this past weekend that my brother's cancer has definitely > returned. He went through radiation treatment the first time and [quoted text clipped - 4 lines] > > Jeanne > We learned this past weekend that my brother's cancer has definitely >returned. He went through radiation treatment the first time and [quoted text clipped - 5 lines] > Jeanne > Jeanne, Hobbes and the girls will send purrs for your brother and I shall light a healing candle. Positive thoughts and gentle hugs to all of your family that your brother does well with the chemo with little side effect. Julie, Hobbes, Selena and Lacey In the fine newsgroup "rec.pets.cats.anecdotes", 2004: > We learned this past weekend that my brother's cancer has > definitely [quoted text clipped - 3 lines] > time instead. So we understand full well the ordeal and anxiety > you and Rob have been through. We'll be thinking of you all. Jeanne, purrs being sent out for your brother. Sometimes it just takes a while and while cancer can be so aggressive, the treatments these days are just as much so and stories are being told more and more of those beating it. Our thoughts are also with you and your family. SignatureCheryl > In the fine newsgroup "rec.pets.cats.anecdotes", > 2004: [quoted text clipped - 12 lines] > more of those beating it. Our thoughts are also with you and your > family. Ours too. C is the pits, but it *can* be overcome. Here's hoping for your brother. Tweed > >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > >today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 9 lines] > So we understand full well the ordeal and anxiety you and Rob have > been through. We'll be thinking of you all. Purrs to your brother, Jeanette. Yowie > We learned this past weekend that my brother's cancer has definitely > returned. He went through radiation treatment the first time and > everything seemed A-OK. Now that it's back, the doctor says his body > can't take radiation any more and he'll have chemo this time instead. I'm very sorry to hear this, Jeanne. Many purrs for your brother, his treatment, and all of your family. SignatureMarina, Frank and Nikki Email marina (dot) kurten (at) pp (dot) inet (dot) fi Pics at http://uk.f1.pg.photos.yahoo.com/frankiennikki > > We learned this past weekend that my brother's cancer has definitely > > returned. He went through radiation treatment the first time and [quoted text clipped - 3 lines] > I'm very sorry to hear this, Jeanne. Many purrs for your brother, his > treatment, and all of your family. Adding purrs to the chorus. Yowie > We learned this past weekend that my brother's cancer has definitely > returned. He went through radiation treatment the first time and [quoted text clipped - 4 lines] > > Jeanne Oh no! Purrs and prayers are on their way. ------ Krista > > We learned this past weekend that my brother's cancer has definitely > > returned. He went through radiation treatment the first time and [quoted text clipped - 8 lines] > ------ > Krista So sad for you Jeanne. Purrs and prayers from Kitty FC, BF and me. It can work. It *does* work, these purrs and prayers. Try and keep your brother positive. Once there was a mistake at my doctor's and they sent me a letter which seemed to suggest I had cancer. I can remember how I felt, absolutely panic-stricken. The letter arrived on a Saturday and I couldn't find out anything until Monday. What a great weekend I had. Tell him we are thinking about him and wishing for a good outcome. Tweed > We learned this past weekend that my brother's cancer has definitely >returned. Why, thank you all for the purrs, prayers, and good thoughts for my brother. I really hadn't expected a reply but should have known better - you're such a kind and caring group. We truly appreciate your good wishes and know they're helping. Many, many thanks. Jeanne Purrs for recovery, and cheers to Rob for kicking cancer in the a.s! Baha Blessed be! > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > > Pam, Rob, and the Fayetteville Seven >We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) >today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 10 lines] > >Pam, Rob, and the Fayetteville Seven So glad to hear this! Continued purrs. Ginger-lyn > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming > back. However, they're having Rob's MRI films reviewed by a group of > specialists this afternoon, and we'll find out what they say tomorrow. This is very encouraging news, Pam! I hope Dr. Ewend is right. I was wondering how you all were doing and was going to post an inquiry this afternoon. Hobbes, Selena and Lacey continue to send their finest purrs in your direction and I'm sending positive thoughts. Julie, Hobbes, Selena and Lacey This is purrfect news: hope it holds true. Very best wishes Gordon & Terrible Trio SignatureFeline family viewable at: http://community.webshots.com/user/exocat > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming > back. Oh wow, that's wonderful! I'm so very happy for you - you really do so deserve this. Continued purrs and best wishes for Rob and hugs for the rest of his family, SignaturePolonca & Soncek > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming > back. <snip In the fine newsgroup "rec.pets.cats.anecdotes", Tanada <tanada@earthlink.net> artfully composed this message within <news:P7UUc.2231$2L3.822@newsread3.news.atl.earthlink.net> on 18 Aug 2004: > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel > Hill) today, and he said that he doesn't think that Rob's tumor [quoted text clipped - 10 lines] > afraid of. Your purrs, prayers, good thoughts, and blessings > have struck again. Thank you everyone. Purrs and good thoughts still coming your way. SignatureCheryl > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 8 lines] > a lot better than we were afraid of. Your purrs, prayers, good > thoughts, and blessings have struck again. Thank you everyone. Lots of Purrs (and kitty snores at the moment), wags, oohs and and aahs, and prayers for Rob (and hs family of course). Yowie > We went up to see the Neurosurgeon, Dr Ewend, at UNC (Chapel Hill) > today, and he said that he doesn't think that Rob's tumor is coming [quoted text clipped - 11 lines] > > Pam, Rob, and the Fayetteville Seven Good news! Continuing purrs. SignatureAdrian (Owned by Snoopy & Bagheera) A house is not a home, without a cat. UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend call us back. Dr Ewend was in surgery all day yesterday, so couldn't get hold of us, and we couldn't get hold of him. Anyway, the news is the best possible right now. The specialists (radiology pathologists specializing in brain tumors) agree with Dr Ewend that there is no signs that the tumor has grown. The recommended course now is to give Rob a course of large doses of temodar (I never spell this correctly) for a year, as a precaution to make sure the sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on him. After a year, or as long as he can tolerate the stuff, whichever comes first, Rob will be taken off the Temodar. We're still on MRIs every two to three months, and regular visits with the drs. I'm beginning to think I need to cross cross stitch a picture for them. I think now that the bad temper and inappropriate comments were because of stress and the steroids. Rob really doesn't remember saying any of those shocking comments or blowing up at anyone. I believe him. Rob has always admitted to any thing he's done, so long as he remembers it. Pam S. really relieved >UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend >call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > >Pam S. really relieved I'm so glad that the tumor hasn't grown. Stress relieving and medication purrs and meatloaf meditations are on the way. BTW, this is one time that a nagging wife is called for. -- Nan A wise man talks because he has something to say; a fool talks because he has to say something. well, this just made my Friday, Pam :o). Purrs, always, Christine > UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend > call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > > Pam S. really relieved > I think now that the bad temper and inappropriate comments were because > of stress and the steroids. Rob really doesn't remember saying any of > those shocking comments or blowing up at anyone. I believe him. Rob > has always admitted to any thing he's done, so long as he remembers it. My uncle had a stroke two years ago and is now dysphasic. My aunt nearly dies of embarrassment when he sees a big woman in the street, points to her and says "fat" It has certainly affected his brain, but he has become more kind than he was in that he wants to feed everyone and will invite people in off the street. When they are out, if auntie spots anyone of an unusual appearance, she grips uncle's hand and says "don't say a word" and he doesn't. It's hard for her as he seems to have lost the ability to decide what is appropriate to say and what isn't. It's sad. He was a bishop. A lovely man. He gets so frustrated because he can't say what he wants to. Tweed Whew! That's great news! -- Joy (relieved along with you) > UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend > call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > > Pam S. really relieved Yay! Glad its good news. Stress and steroids are *not* a good combination. Steroids can make people very aggresive and short tempered whilst at the same time leaving htem feeling very empowered (after a long time of feeling like crap, you suddenly feel *great*). Occasionally Ihave to take prednisone because of my asthma, and its like I've got permanant PMS in mood, but feel like I could take on the world (which of course makes it worse) Yowie > UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend > call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > > Pam S. really relieved > Yay! Glad its good news. > [quoted text clipped - 8 lines] > > Yowie Now that didn't happen to me at all. When I was first diagnosed with asthma, and was put on a very high steroid dose to allow me to breathe, I felt on top of the world. I loved everyone, got three times as much work done as usual, and had a spotless house. I even alphatbetised my books and music. No aggression or temper. Jeanette > Yay! Glad its good news. > [quoted text clipped - 6 lines] > I've got permanant PMS in mood, but feel like I could take on the world > (which of course makes it worse) When Sam was two years old, he had an asthma attack. The prednisone gave him severe roid rage that lasted longer than seemed logical. We had to take him home from a birthday party because he wacked the host on the head with a rock. It was terrible. Susan M Otis and Chester > When Sam was two years old, he had an asthma attack. The prednisone gave > him severe roid rage that lasted longer than seemed logical. We had to take > him home from a birthday party because he wacked the host on the head with a > rock. It was terrible. Now, take that and add 40 years to the age level. No rocks, thank Bast, but lots of anger. Pam S. still long suffering <not >> Yay! Glad its good news. >> [quoted text clipped - 15 lines] > Susan M > Otis and Chester No personal experience, but it was my observation watching my nephews grow up that medications really affect young ones strangely and often the opposite of the emotional side effects for adults. What makes us sleepy seems to make some of them hyper etc. Poor Sam. Poor you. I hope he grows out of his asthma. > Yay! Glad its good news. > [quoted text clipped - 6 lines] > I've got permanant PMS in mood, but feel like I could take on the world > (which of course makes it worse) Poor Rob didn't get the empowered feeling. He got aggressive and short tempered and felt as though his mind and body were being taken over. He also says that he wasn't getting one bit paranoid, thank you very much. Pam S. long suffering > > Yay! Glad its good news. > > [quoted text clipped - 10 lines] > tempered and felt as though his mind and body were being taken over. He > also says that he wasn't getting one bit paranoid, thank you very much. Guess it effects different peeps in different ways, but the agressiveness / short temperedness is not unusual when on steroids. Purrs to Rob, and more purrs again to the long suffering one. Can I cheer you up and say that Cary can now hawl himself to standing position all by himself (and boy isn't he so proud of himself when he does!). He doesn't have the balance to stand (or even sit) yet unsupported, but I am quite sure I'm going to have a marauding toddler on my hands by Christmas. Poor, Poor Shmogg.... Yowie > Guess it effects different peeps in different ways, but the agressiveness / > short temperedness is not unusual when on steroids. [quoted text clipped - 6 lines] > but I am quite sure I'm going to have a marauding toddler on my hands by > Christmas. Poor, Poor Shmogg.... HAHAHAHAHA, boy are you going to have your hands full. WTG my honorary grandson. I wouldn't worry about Smogg, he'll train Cary how to behave towards a superior species, and then have Cary teaching you. Thanks, I need a good laugh on a regular basis, and that post provided one. Pam S. still laughing So glad your feeling better about Rob,I'm sure he was under the influence of the tumou when he was being a bit naughty, tumours tend to do that to people Cheers that things go really well from here on in Jean.P. > Yay! Glad its good news. > [quoted text clipped - 35 lines] > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.736 / Virus Database: 490 - Release Date: 9/08/04 great news. Purrs that all the MRIs will stay clean. >UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend >call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > >Pam S. really relieved SignatureSteve Touchstone, faithful servant of Sammy, Little Bit and Rocky stouchst@JUNKsirinet.net [remove Junk for email] Home Page: http://www.sirinet.net/~stouchst/index.html Cat Pix: http://www.sirinet.net/~stouchst/animals.html On Fri, 20 Aug, Pam S. wrote: ---------------------<snip>---------------------- >Anyway, the news is the best possible right now. The specialists >(radiology pathologists specializing in brain tumors) agree with Dr >Ewend that there is no signs that the tumor has grown. ---------------------<snip>---------------------- That's great news! Purrs that the C stays in remission. Regards and Purrs, O J Hey Pam: I was away from the ng when you posted the original message. I'm glad that Rob's tumor is under still control, though I don't see the original post to see exactly what happened - purrs to all of you. Susan M Otis and Chester > On Fri, 20 Aug, Pam S. wrote: > [quoted text clipped - 8 lines] > Regards and Purrs, > O J > Hey Pam: > > I was away from the ng when you posted the original message. I'm glad that > Rob's tumor is under still control, though I don't see the original post to > see exactly what happened - purrs to all of you. Briefly (though that isn't possible for me), we were coming back from vacation, when Rob had a seizure. The ER doc had a CT done and told us that there was some calcium build up, but nothing major that they could see and for Rob to go on steroids and stay on his meds. (Rob had decided that he couldn't remember to take his meds, so why bother) We got back and called Rob's oncologist who had Rob get an MRI. The radiologist reading the MRI decided that the tumors were growing back in two places. We were then sent to UNC/Chapel Hill, where we saw a neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs that the tumors were growing and then put the MRI films before the experts in his group and on the tumor board. They agreed with him on the tumors not growing and on what he wants next, Temodar for the next 12 months, or however long Rob can tolerate it, whichever comes first. Rob's military oncologist, who's very good BTW, is wondering why put Rob back on Temodar if there is no signs of it growing back. The oncologist and surgeon now get to work out the best treatment for Rob. We're celebrating. Pam S. > > Hey Pam: > > [quoted text clipped - 21 lines] > and surgeon now get to work out the best treatment for Rob. We're > celebrating. I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! > I hadn't been familiar with Temodar, but had a chance to read some of > the relevant medical literature today. It's revolutionized the > treatment of brain cancer, with effectiveness nothing before has ever > approached. > > Good luck! Howard, you are extremely knowledgeable about medications (among other things), are you in the medical field, really, really smart, or both? ;> Hugs, CatNipped > > I hadn't been familiar with Temodar, but had a chance to read some of > > the relevant medical literature today. It's revolutionized the [quoted text clipped - 5 lines] > Howard, you are extremely knowledgeable about medications (among other > things), are you in the medical field, really, really smart, or both? ;> Well, let me put it this way -- I'm not a physician, but I simulate them on computers. I manage to be underemployed both in network engineering and clinical computing! I'm more published in network engineering, but medicine has been a lifelong interest. Some of my projects include expert systems that try to put the "doc into the box," so I have to get into the fundamental medical science, not just this pill does that. > Well, let me put it this way -- I'm not a physician, but I simulate them > on computers. I manage to be underemployed both in network engineering > and clinical computing! I'm more published in network engineering, but > medicine has been a lifelong interest. Some of my projects include > expert systems that try to put the "doc into the box," so I have to get > into the fundamental medical science, not just this pill does that. That's awesome - and totally fascinating. What a great way to make a living! From your notes to the group I can tell you're very good at it, I would have sworn you were an MD (in fact you seemed to know more about some of the medications I was taking than my doctor did!). Hugs, CatNipped > > Well, let me put it this way -- I'm not a physician, but I simulate > > them [quoted text clipped - 10 lines] > some > of the medications I was taking than my doctor did!). One of my wiser physicians, a highly regarded cardiologist, suggests that I know more about the combination of the dozen or so drugs that I take than almost any physician -- because I've had more incentive to study their interactions, read obscure papers, etc., than any regular practitioner would have for that specific combination. We also agree that when someone is taking ten or more drugs, nobody really knows what they are doing to each other. In some respects, understanding drugs has become easier in the last 15-20 years, as long as people -- doctors or educated laymen -- will do the homework to understand how they work at a molecular basis. Prior to some of the more recent theory, doctors had to memorize huge texts about drugs, but still really didn't know WHY things behaved the way they do. I have the greatest of respect for physicians that didn't learn this background in medical school, but have made the effort to master it. Some specialties get more into drugs than others -- it's a running joke that orthopedists are very highly paid plasterers and carpenters. > > > Well, let me put it this way -- I'm not a physician, but I simulate > > > them [quoted text clipped - 28 lines] > Some specialties get more into drugs than others -- it's a running joke > that orthopedists are very highly paid plasterers and carpenters. Us lowly chemists (industrial, a paint technologist to be exact) can only grovel at the feet of someone who understands the interaction of such complex molecular chemistry on physiology. It makes my brain hurt just thinking about it (and organic chemsitry was my strongest subject!) Kudos to you, Howard! (and purrs of course) Yowie > I hadn't been familiar with Temodar, but had a chance to read some of > the relevant medical literature today. It's revolutionized the > treatment of brain cancer, with effectiveness nothing before has ever > approached. > > Good luck! Thanks. Rob is part of the third stage of testing for it; which, if I understand correctly, is for getting the dosages set up. I suspect that is part of the reason the Surgeon at UNC wants to keep up with the Temodar. The Drs. haven't agreed on a treatment plan yet, but when they do... Could use purrs. Rob and I have an appointment with Social Security on September 7th to turn in paperwork and, hopefully, find out if Rob qualifies for disability payments. Social Security is notorious for not finding anyone disabled so long as they can breathe. Pam S. > > I hadn't been familiar with Temodar, but had a chance to read some of > > the relevant medical literature today. It's revolutionized the [quoted text clipped - 15 lines] > > Pam S. Purrs for your dealings with Social Security. And do not hesitate to stress the mental component of his disability as well as the physical. I'm quite sure he has enough of a fight on his hands to use up every shred of physical and mental energy he ever had. Jo >Could use purrs. Rob and I have an appointment with Social Security on >September 7th to turn in paperwork and, hopefully, find out if Rob >qualifies for disability payments. Social Security is notorious for not >finding anyone disabled so long as they can breathe. Purrs that all goes well at the appointment, but don't get too discouraged if it takes several trips. As you say, they take their own sweet time before they make a decision. According to one of my customers, after he was injured and disabled on the job was getting workers comp was almost as bad. His worse experience came from the company he worked for, though, even worse than Social Security. What made that so frustrating was, that he had to go to court up in Oklahoma City many times. He and his wife would drive up from Lawton and many times they'd show up and the company lawyers wold get up and ask for a continuance or ask that he be seen by yet another specialist. After more than a year of that the judge in the case got fed up, called the lawyers from both sides into his office and told them that if they didn't settle he would. Even then the company's lawyers tried to stall at the next court date. SignatureSteve Touchstone, faithful servant of Sammy, Little Bit and Rocky stouchst@JUNKsirinet.net [remove Junk for email] Home Page: http://www.sirinet.net/~stouchst/index.html Cat Pix: http://www.sirinet.net/~stouchst/animals.html > > I hadn't been familiar with Temodar, but had a chance to read some of > > the relevant medical literature today. It's revolutionized the [quoted text clipped - 13 lines] > qualifies for disability payments. Social Security is notorious for not > finding anyone disabled so long as they can breathe. If you haven't already enlisted their help, talk to the business office and/or social services at the hospital. There's been a recent flurry of articles in medical business journals that it's to hospitals' advantage to be very good at helping people get on SSDI -- it's often the only way they may be paid for uninsured emergency patients. Lots of consultants and guides are floating around. (snippage) > Could use purrs. Rob and I have an appointment with Social Security on > September 7th to turn in paperwork and, hopefully, find out if Rob > qualifies for disability payments. Social Security is notorious for not > finding anyone disabled so long as they can breathe. > > Pam S. Purrs, purrs, purrs! Dealing with Social Security can be the pits - we are crossing our appendages for you. ------ Krista Lots of purrs and best wishes for Rob to get his disability payments without a problem, SignaturePolonca & Soncek <snip>> Could use purrs. Rob and I have an appointment with Social Security on > September 7th to turn in paperwork and, hopefully, find out if Rob > qualifies for disability payments. Social Security is notorious for not > finding anyone disabled so long as they can breathe. > > Pam S. Wow Pam - that's a lot to happen to you all - so much worry for you. Is the Temodar hard to take - it sounds like it has side effects? My best wishes to you and Rob and crew - your sense of humour must serve you well and I admire you for it. Susan M Otis and Chester > Briefly (though that isn't possible for me), we were coming back from > vacation, when Rob had a seizure. The ER doc had a CT done and told us [quoted text clipped - 15 lines] > > Pam S. > Wow Pam - that's a lot to happen to you all - so much worry for you. Is the > Temodar hard to take - it sounds like it has side effects? My best wishes > to you and Rob and crew - your sense of humour must serve you well and I > admire you for it. Rob has handled the Temodar very well in the past. He was sicker than all get out the first day, but the oncologist prescribed some medicine for the nausea, and Rob had no problems after that. Like any Chemo, Temodar can/will affect one's blood counts. Fortunately, it is in pill form, so Rob won't have to sit for hours with an IV hanging over his head. They still haven't got hold of us, so we don't know what the deal is with it, yet. Paws are crossed here that they work it out and get us off limbo land. I'm working on the next phase, right now, getting Rob SSDI. After that fight, we'll take on the next one, whatever it is. Pam S. acting as pompous as usual I hadn't realized that Temodar is a chemo. Is it possible that the tumours may disappear entirely or is it expected that they just get to a certain size and stay like that in perpetuity? Good luck on that SSDI fight - pompous might be what it takes to get *that* done :-) I thought Howard had some good advice about engaging the hospital to help, if possible. Pam = pompous??? Still scratching my head ... Susan M Otis and Chester ... and two little kids who don't want to go to bed ARGHHHHHHHHHHHHHHHH > > Wow Pam - that's a lot to happen to you all - so much worry for you. Is the > > Temodar hard to take - it sounds like it has side effects? My best wishes [quoted text clipped - 12 lines] > > Pam S. acting as pompous as usual What a relief! Many purrs coming up for Rob to continue to do well and for the meds to work and agree with him. -- Britta Sandpaper kisses, a cuddle and a purr. I have an alarm clock that's covered in fur! Check out pictures of Vino at: http://photos.yahoo.com/badwilson click on the Vino album > UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend > call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > > Pam S. really relieved That's great news!! What a relief!!! Stress-relieving purrs are on the way..... --Kim and Lucy >UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend >call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > >Pam S. really relieved > Anyway, the news is the best possible right now. The specialists > (radiology pathologists specializing in brain tumors) agree with Dr > Ewend that there is no signs that the tumor has grown. That is wonderful news, Pam. Many purrs to you all, and Nikki offers to come over with her sharp claws if Rob "forgets" to take his medicine. I told her he has quite enough klitty nurses around as it is. SignatureMarina, Frank and Nikki Email marina (dot) kurten (at) pp (dot) inet (dot) fi Pics at http://uk.f1.pg.photos.yahoo.com/frankiennikki > That is wonderful news, Pam. Many purrs to you all, and Nikki offers to come > over with her sharp claws if Rob "forgets" to take his medicine. I told her > he has quite enough klitty nurses around as it is. Thanks Marina and Nikki. I'll definitely keep Nikki's offer in mind for the next time Rob gets out of line. Pam S. > UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend > call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > > Pam S. really relieved WooHoo! That's marvelous news! If you'd like, I'm sure it can be arranged that all of rpca can nag him in turn by e-mail. :-D ------ Krista Who's HaPpY DaNcInG for you > WooHoo! That's marvelous news! If you'd like, I'm sure it can be > arranged that all of rpca can nag him in turn by e-mail. :-D > > ------ > Krista > Who's HaPpY DaNcInG for you I like it. Rob's email is Hawktech@excite.com Nag away. Pam S. > > WooHoo! That's marvelous news! If you'd like, I'm sure it can be > > arranged that all of rpca can nag him in turn by e-mail. :-D [quoted text clipped - 6 lines] > > Pam S. Kewl! I get to nag *someone else's* DH for a change! Mine will no doubt be relieved. ------ Krista >>> WooHoo! That's marvelous news! If you'd like, I'm sure it can be >>> arranged that all of rpca can nag him in turn by e-mail. :-D [quoted text clipped - 9 lines] > Kewl! I get to nag *someone else's* DH for a change! Mine will no > doubt be relieved. Surely you can nag more than one at a time? ;-) SignatureAdrian (Owned by Snoopy & Bagheera) A house is not a home, without a cat. > UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend > call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 19 lines] > > Pam S. really relieved {{{{{{{{Pam}}}}}}}}} I'm happy for you. SignatureAdrian (Owned by Snoopy & Bagheera) A house is not a home, without a cat. > sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on Do keep the nagging on! I'm glad to hear the tumor isn't growing. SignatureVictor Martinez Owned and operated by the Fantastic Seven (TM) Send your spam here: uce@ftc.gov Email me here: pistorLITTER@BOXaustin.rr.com That's wonderful! Lots of best wishes and purrs, SignaturePolonca & Soncek > UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend > call us back. Dr Ewend was in surgery all day yesterday, so couldn't > get hold of us, and we couldn't get hold of him. > > Anyway, the news is the best possible right now. <snip >I think now that the bad temper and inappropriate comments were because of stress and the steroids. Rob really doesn't remember saying any of those shocking comments or blowing up at anyone. I believe him. Rob >has always admitted to any thing he's done, so long as he remembers it. > >Pam S. really relieved I hope/pray/purr (well Spicey purrs) the good news continues. Suz Macmoosette Thank Heavens There's Only One =^..^= =^..^= =^..^= =^..^= =^..^= =^..^= Waiting for inspiration. Please hold while I contemplate my navel. |\__/| (=':'=) (")_(") In the fine newsgroup "rec.pets.cats.anecdotes", Tanada <tanada@earthlink.net> artfully composed this message within <news:2MsVc.30148$nx2.26727@newsread2.news.atl.earthlink.net> on 20 Aug 2004: > Anyway, the news is the best possible right now. The > specialists (radiology pathologists specializing in brain > tumors) agree with Dr Ewend that there is no signs that the > tumor has grown. Great news Pam. You guys deserve a break! SignatureCheryl > UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend > call us back. Dr Ewend was in surgery all day yesterday, so couldn't [quoted text clipped - 17 lines] > > Pam S. really relieved We're really relieved, too, Pam. Purrs and prayers for Rob's continued improvement. Sam and Ramona |
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